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tv   The Stream 2020 Ep 62  Al Jazeera  May 27, 2020 5:32pm-6:01pm +03

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off the streets because what was happening in the central business district or wednesday was of course illegal assembly a court in france is deciding whether rolonda and genocide suspects for the c. and cobol go will be handed over to u.n. custody boogers accused of helping finance the mass killings in 1904 but he says the charges are lies as lawyers say he won't get a fair trial at a u.n. tribunal accusations of vote rigging during burundi's presidential election have deepened with the catholic church now saying it observed many irregularities every east and they shimmy a from the ruling party was declared the winner last week with nearly 70 percent of the vote the church says it's observers witnessed ballot box tampering how distant of voters and proxies registered to the place of dead people those are the headlines coming up next on al-jazeera it's the stream goodbye. what impact will called it 19 and a drop in the oil price on the race to the point you. can download from survive
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these historic setback until joe probably would take defeat. special come on just. me and you are in the stream home edition welcome to my dieting reading table now today we are talking about people with disabilities and the impact that the coronavirus is having on them i have an excellent lineup of jess so i am going to get them to introduce themselves that. i am sometimes director of disability rights and human rights watch. good to have you in the stream. all right. and disability rights. campaigner and
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a sports. writer looking for bringing your expertise to our conversation and hello dr kim. hi i'm merely jackson known osteopathic position and a disability rights advocate and activist who of the colorado cross the ability coalition or 3rd pronouns or she and her. get to have a delta camp such as always has the stream ryall an interactive called the say she knew can be in the conversation as well. thank you very much for being here you can comment you can have questions you can push back what are your stories please send them to us in at that and also if you will on twitter at a.j. stream is how to get in touch with us let me start with a tweet from the united nations enable group and they say on twitter because it 1000 pandemic comes with particular challenges for the most fun ripple including people with disabilities check the tips on how to ensure everyone receives the care they need in the current virus pandemic and as
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a graphic and it talks about physical barriers to access hunting facilities the need to touch things you have to touch that difficulty in electing social distancing and difficulty accessing in summation say that boiling it down not only is the question of virus difficult for everybody but particularly if you have to supply delta came from your perspective can you give an example of where someone with disabilities the new experience is going to be struggling right now in this pandemic. well for those of us with more severe disabilities we often need help from care providers who come into our own most of us have multiple care providers who may or may not work with other clients and so it's something we've been struggling about it here in the u.s. and i understand around the world there's a shortage of personal protective equipment to keep our. care assistant state and to keep our feet. people with disabilities and so i think that's something we
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really been trying to figure out solutions for i'm sure you'd see. many countries people have been working on quite. cover the fate can protect the spread of the virus and we also talked about things like using even trash bag to cover your quote so that you don't carry the virus around on your quote or having a separate set of quote that you wash it you can and new change when you get to the person and then we are able to watch the quote their weight but of course all that create unique challenges well because. some of those resources aren't available it's not easy for people of this ability to get access to some of those who are and also just coming up with a plan well this is not stuff that's really meant to be doing that there are protected can we be and how can we achieve that with what we have and what you know about. and i'm looking at a piece of a quite recent rate. i get
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a chance of ringing and going to somebody at a job they know i just don't get it. i think you raise a good point dr kim i think that that's for people who have caregivers who are still coming at home and then there's of course people who because of the quarantines dish situation the caregivers are no longer able to come and you know people who need help her deal e things that we all take for granted eating meals or taking showers and even more challenges and in really doing those. just basic those basic tasks and i think that's where you know the situation is even more complicated for people with disabilities and i was saying a little bit earlier that there's a piece that you wrote particularly as from your perspective as a paralympian but i know that you will focus your concern is about people with mental disabilities all that was
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a challenge is as well can you explain that piece why did you write that. enough to start let me start by saying that he said what people i've been excluded from most governments and i can see plenty and because of that. i think that my demise as sean is is just sort of like taken a different scales altogether and that plays a lot on people's mental wellbeing you know i knew my doing being disabled and having to rely on a caregiver for example you know on having to rely on certain facilities in the community that house you leave sort of a normal life and then suddenly the government say's you know they announced and then my d.n.c. and lockdown for example you know a day and announce that you cannot just go to the supermarket and then you realize you know like when dr kim say that suddenly you have a tree ski that you know by someone who is coming to you not to give you that can that's because i sort of just realize that mental well being is why towards us
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together you know as i you know as apostles and since all of this began after i saw many e-mails and text messages from people we different challenges all different obstacles telling me that. their mental health is really is trying to in oh there's one person who's you know who suffers from anxiety and despite some telling me that you know every time i switch on the news and they talk about statistics of how many people have died despite sony's thinking should i just commit suicide because his anxiety has gone really high you know there's another one who is sort of like really strong as we. keep cleaning and you know washing their hands but when the media is so full of wash your hands tiny towns and all back new found has south cleaning the walls of house. i think we you know you know we have getting all these
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good messages going out and telling us how we are we should not solve these hygiene and stuff like that but then we also need to realize that they're all you know there's a group of people who are struggling more from everything. you know and and that's why i wrote back piece i said how do we learn to control our have our mental health on mental am have our own mental health and you know well being this particular time you talk like different things and just sort of like in london to really think of number one and number one is yourself behind those closed doors what is happening right how are you i'm going to appoint how are you. and i just i just want to just jump in just a little bit because you tube is talking to you as well to do i guess is a thanks for being part of the show today who will and why i see say is yes the
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disability a regime people often talk about the elderly and the vulnerable so vague but not always disabled and or clinically ill it's not new but it's frightening it almost feels like shams and that the prejudices that already out there didn't buy this pandemic what's your experience been shatha. i don't really we've heard a lot about the situation in nursing homes and it's staggering the number of deaths that are taking place but one of the most invisible groups at least from my experience is the we're going to main rights watch as people who are living behind these closed. doors these institutions mental health facilities where you really no one is know no one really knows what's going on and these are hundreds of people who are living in many countries in unsanitary conditions laying on the dirty floor don't have clothes on or very raggedy clothes who don't have
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access to nutritious food and in some cases in many countries we even found people who were changed because they had mental health conditions and these kind of circumstances you can just imagine if the komen pandemic reaches these institutions . just what kind of devastation will happen there and yet they're invisible and what we hope to do in along with a lot of our partners is make sure that we're telling their stories and making sure that a cogent response doesn't exclude them. and. you know i really i don't think i'd. i just and i get says made up in comes in 2nd i just feel like champagne is really talking about you know about africa are you not and especially if i may speak of east africa because i'm originally from kenya and you know can give us and you know are unable to keep that social distance and because they have to carry on assisting you know peasants living with disabilities but at the same
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time they have the breadwinner as they have to go out in the community and go and do the small jobs they do so that they can bring food buck you know at home and when you talk about that could be possible protection equipment that isn't had of it's not in the vocabulary or any passed on in east africa at the moment and that is where i am i feel at ease you know what is really going to happen when this pandemic heats these developing nations. and even here in the us. here in the u.s. and a lot of skilled nursing facilities are nursing homes we talk about older people that are living in the nursing homes but again the invisible population is there a lot to younger people even with disabilities that are nursing some of my friends grew up in children and nursing homes and only were able to get out with the assistance of a lot of programs that we've started to work to establish here in the u.s.
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and the problem with that is that being an invisible population they are just as much if not more so at risk than the rest of us who have disabilities that kobe has and with saying about especially nursing assistants here in the u.s. they often have to work at multiple nursing homes because their pay is significantly lower than a lot of the other people that work in the nursing homes and they don't aren't they don't have the personal protective equipment to use to keep them in their patient safe and i actually just went to a web in on friday and we talked a little bit just about online and how we're all learning to be more online this is an online webinars i went to and they said one of the biggest infection control problems with simply hand washing and that really nursing assistant stack they have 8 or 9 patients that they have to see they may all be trying to get showered it want and so it's really hard to wash your hands between each patient and so a lot of these nursing homes have become huge incubators of coded with very large
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numbers of deaths because there are unsanitary conditions there are unsafe conditions and so i think we we worked a lot so that we don't have the level of abuse that they have been some places and certainly i mean nursing homes are better than others but we still have a lot of these problems here and they're not talked about in terms of disability they're talked about in terms of older adults. yes i'm a lawyer i would tell you the brewing if i'm going to bring in another comment here come right back me and a liberal and he's an author and on twitter she was discussing disability in the car on a virus with us she says i'm in a wheelchair i don't drive my housemate has severe visual impairment and can easily tell if she's keeping social distance my m.p. told me to go to a local charity but food parcels don't cater for dietary needs and it was such an
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important conversation that we actually then called her up and asked her to explain a little bit more the u.k. government is neglecting its disabled people with the vulnerable less that is given to the supermarket it's ignoring those of us with mobility issues who are to stick and you have other issues that think it should be expanded to meet the needs of all disabled people within the u.k. not just those with susceptibility to the virus there are those of us who can't get out or who don't have support who need it and met with finding in this situation is that all of the provisions are being made for lock downs all around the world they're not yes we thinking about people with disabilities go ahead. i know exactly where i was going to make a similar point when we've done work on the situation for refugees in many countries and we've actually looked at the situation for refugees with disabilities now you can just imagine how difficult it is to do social distancing and keep your hands clean and have hand washing in refugee camps but when you add
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a layer that you're a person with a disability i mean one of our close partners is an amazing young woman named eugene moustapha she's. from syria and she traveled all the way from syria to germany in her wheelchair a few years ago and she. had been working with asked to tell the story of the situation of refugees with disabilities she told us how when she was a refugee in greece she wasn't even able to wash her hands at the tap and that's in a normal circumstance let alone now because the tap was too high for someone in a wheelchair to reach and then. we've heard stories from there and in other conflicts in africa in the middle east where people with physical disabilities in particular are literally crawling into the toilets because the toilets are not accessible and so when you when you think about the health risks that are associated with al you add on top of that mean it's an impossible situation where
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in many cases people with disabilities have been overlooked. no the center you are you are you don't really write you know i give you an example of what is happening in kenya you know this there is increasing in violence at the moment and you know this is a posture that has been rolled out in the whole of kenya i think the problem is the police don't know how to enforce us years on people with disabilities so the actually mishandling on really really treating this episode with disability home so bad ways and i'm sort of just wondering when them you know like the human and the human rights watch you're going to be looking at these because it's terrible for example and when a woman we do somebody to was found outside and you know outside the house and sending some you know some you know some stuff and the point using instead of helping this woman they took everything that she was sending and part of the on of the house you know the women are being grants that women are being. you know i mean
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people are stealing from from this women. it just really breaks my heart and i'm sort of wondering is there while watching everybody is talking about on the 19 and now it's affecting the elderly you know that nobody is really talking of how it's affecting their december people you want to believe it back here in the u.k. many people with disabilities are so afraid of what will happen to them when we when they go to hospitals because. we know and then there are all of that now you know what was wrong about 2 weeks ago is that if ostomy with a disability contracts on a virus on cost of the hospital that doctor has a choice on whether the eval body possum who looks healthy and strong should be given priority getting the specialist treatment and. not and if i don't want you
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to find a way for example and if i make i want to show i want to illustrate this a little bit where is it with a letter that has been circulated and it has basically been very frank and it says that you know this is a very hard letter to write to you but it also says people with these conditions are also unlikely to be offered hospital admission these are conditions conditions disability. yes that helps my age and they become unwell and certainly will not be offered and then too late to bed so he's basically having a hierarchy of who is worse yet treatment who is not was he has treatment dr kim is quite shocking that this hierarchy should come from the medical profession itself can you explain to us why that's happening. yes and i would actually say that if you know what. tradition can be like and what it can be like to be a physician it actually not that shocking. but is that i was looking at they did a survey of emergency or providers and 18 percent said they would be glad to be
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alive after final cord injury but when you actually interviewed a spinal cord injury survivors 92 percent report i quality white and when i was in medical school we had an end of life class where we're talking about end of life option and the general can come to many of my choir not myself and this was before i even had the disability bill and now they would rather be dead than in a wheelchair or they would rather be dead than have to pay for their of their life to help with nutrition and. irony 2 is that i ended up both in a wheelchair and i have feeding tube and i need help with my nutrition and beauty and all of that but what i'm trying to say is just that as providers many providers be old that disability is the end of your life your life is over there's no good that can come out of it and so that been get translated to well the person who had the difficulty they must be knows or goal so why should they get care anyway because their life really not that meaningful and when you talk to
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a no ability of god not at all we're very happy to be alive and we're very happy to continue to live our lives even though we have very unique challenges but we have to learn to navigate these fears like a way to get a client to pop to bringing guesses do excuse me for one second to bring in a very well known american disability activist court alice wang and alice one feels a lot of these strategies to be made in these provisions that have the mate doing lockdowns and the current virus strategies for the communities around the well had been done without disabled people because they haven't been thinking about disabled people these get their chance to study trying release it get your treatment through shutdown. sandri of city center steinberger archers such as write your. order and to see her. live as if it appears there is now we are desperately.
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gauging as he sits there and spirits to trace county trash. practices to get past. this it is sheer situation and sensitivity should get those intercepted decision makers to cashier is sent to nationalize people and situation he says it is. and that's the key. and then i look down at it without anything to say japanese. well exactly who haven't been talking with people with disabilities i think that's the other element of that's missing is that there needs to be consultation with people with disabilities when it comes to these medical protocol when it comes to how to support them to live on their own in their or in their own homes that's rare there needs to be a lot more outreach and in honor of that principle that you just mentioned nothing about us without us and i think actually and it comes to these trash protocols so i
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just want to i just want to highlight like can you just mentioned you know people judge your quality of the quality of life of a person with disabilities when you're you both are living testament that people are disposed to have very high quality lives and then the idea that you know i am in so much of the research that i've done especially on people with mental health conditions or people with certain disabilities they have told me again and again people say to them you know you're less than human they feel less than human and they feel that like their people don't see them as equal human beings and that their labors not worthy and i think. we need to listen to people with disabilities and consult them and actually you know have more examples of people like you who are. out there advocating that people with disabilities should be treated equally. so you get shot at things that we haven't spoken about excuse me one second is about young says in kate's and pradeep diva is a dad with
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a young state who is autistic and he had until the current a virus set pandemic he had an amazing one to one kara's in special care is an amazing school and now he's trying to do that when i have south because of the shelter in place corinth team i saw a special needs autism is no longer receiving one on one therapy that he really needs and he's not going to sit behind a screen a video chat or additional chat room it's just not working for him so really feels like repressing pozen is mental development to protect the safety of other people and i just don't understand why the washington state government says it has there is an essential service but as a family we're doing the best we can where trying to make this work we're making it a makeshift classroom but we're not professional caregivers so it's really taken a toll on us so what i'm thinking is i disagree did the disabled communities around the world are incredibly resilient and incredibly adaptable i want to just go very quickly around you all and give us one thing that he's
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a supposed of about what can be done in this situation if you have a disability your loved one has disability and you start. john i think if you have a disability you sort of just really trying to fight back or tsunami you know listening to to talk to dr kim it's not just proves that you know when you have a disability you can still have quality life and that is what we want but also you know last night you might want to probably say is raising finest you know raising more awareness i am so happy that i am from tampa or new york rather be united by going to be working with me you know with my foundation to make sure that we equip as many. people as possible with masks and sanitise us and you know day has and you know sanitary pads that get in we need so i don't know what we have resilient and we have to stand together we're in this together you know to really try to bring the government on board right just and we need to have the information
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that's available in ways that people in disabilities can can get final information about coded and how to prevent it there's easy to recent plain language examples that are out there and but there are few and far between we need governments and hospitals for mine more information so people with all types of disability needs can actually find out about who get in help protect themselves doctor came bring us have. i think true we can also be amazing resources many of us with disabilities actually more severe disability or use social isolation so we know how to stay connected and we know how we can get involved here mostly and we know how to fight or being stuck at home and so a lot of people think about the people who need to be taken care of but i think we can also be role models and people that can teach a lot about goals that are useful during the pandemic. well to came and shantha
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really appreciate your wisdom one more place to visit and that takes us to you chew on the game of the game thank you the game only if we had spine or if those trillions of dollars we spent on militaries on proving health care and all the development it would be in a much better situation wisdom from you tube comments when does that ever happen thank you so much everybody. june on out to see students in envious care in the state will be heading back to school despite confirmed cases of covert 19 and risk warnings people in power is back with more investigative documentaries from around the wound as the world battles with the role of virus pandemic global health leaders meet remotely to discuss effective solutions for the development of a cold with 19 vaccine and new 2 part investigation asks whether water should be a free natural resource or commodity traded for profit and how are the u.s.
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elections shaping up as the country battles called it 19 we'll look into whether donald trump can survive this historic setbacks june on al-jazeera frank assessments tourism but income stream is dead in the water what's been the result is encouraging significant and in-depth analysis of the day's global headlines inside story on al-jazeera. after more than a decade of civil war life remains a challenge in sierra leone. we follow the citizens of this war torn nation as they push their limits. for survival. risking years of sierra leone. on al-jazeera.
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al-jazeera. this is al-jazeera. this is a new life and coming up in the next 60 minutes. outrage and protests in the united states 4 police officers have been sacked after the death of an unarmed black man. in mass arrests in hong kong as protest as opposed to national anthem bill and beijing's plan security bill.


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