tv Victoria Derbyshire BBC News March 1, 2018 9:00am-11:00am GMT
hello. it's thursday. it's 9 o'clock. i'm victoria derbyshire. welcome to the programme. our top story today: hundreds of drivers have spent the night stranded in snow on the m80 in central scotland with more snow expected right across the uk today. we are in the car and we are warm. there is nothing to look at. it is like a car park. everybody is trying to sleep, i think. there aren't many lights on. we'll be looking at extra payments people living in fuel poverty can claim during the cold weather. also this morning: it's one of the most pressing issues of our time. dementia. this morning we reveal new figures showing 1.3 million people will be living with it in the uk by 2036. i now prefer to email or text. when
i type it is as though dementia has never entered my life. this morning we will bejoined never entered my life. this morning we will be joined by this group of people who all live with dementia or are professionals working in the field. if you have this condition, we definitely want to hear from you this morning. please get in touch in the usual ways. and the home office says it is considering allowing a medical cannabis trial to treat a six—year—old boy with a rare form of epilepsy. we'll speak to alfie dingley‘s parents before the end of the programme. hello and welcome to the programme. we're live until iiam. really keen to hear from you about your experience of living with dementia this morning or if you care for someone who does. please do get in touch and if you're happy to speak on air we'll try and get you on before the end of the programme.
use the hashtag victorialive. you can message you can message us you can message us on you can message us on facebook. our top story today: the met office has issued a second red alert for snow, this time for south wales and south west england. this red warning means the extreme weather poses a real risk to life. in scotland, hundreds of drivers have spent the night stranded on snowbound motorways. some were stuck for more than 15 hours. others have been stranded overnight near skegness in lincolnshire where police say even snowploughs can't get through and military vehicles have been deployed. let's get the latest from our correspondents. catriona renton is in glasgow. good morning. it is really cold here. you can probably see the powdery snow floating by behind us but it is really cold and it is very quiet. because of the snow, of course. people have heeded the warning this morning and there is
very little traffic on the roads. the people stranded overnight, people are doing their best to sort out that situation. people were stranded at glasgow airport overnight and the airport is hoping to open at three o'clock this afternoon. two thirds of schools in scotla nd afternoon. two thirds of schools in scotland are closed today, i understand. again that is tens of thousands of children that will have the day off school. more to tell you about the red warning that we are in the middle of hearing glasgow. —— here in glasgow. it is in central and southern scotland at the moment and southern scotland at the moment and it is due to be called off at ten o'clock this morning but there is still an amber weather warning for much of the day until six o'clock tonight. we are told not to get too hopeful than either because the forecast until the weekend is for pretty bad weather, if not as bad as it is now. people are bracing themselves and hunkering down. really it is a day to stay in the
house and keep warm if you possibly can. my colleague john house and keep warm if you possibly can. my colleaguejohn kay is in truro. i feel your can. my colleaguejohn kay is in truro. i feelyour pain. can. my colleaguejohn kay is in truro. ifeelyour pain. good morning from cornwall. a lot of people woke up in the south of england in southland midway of this morning and looked out of the window and thought it wasn't too bad. powdery snow falling but what is all the fuss about? maybe we shouldn't have closed all the shops and businesses and schools and doctors surgeries. but in the last few minutes the latest warning has come from the met office to say that they still believe this will be a very bad storm in this part of the country. they have issued this red alert, the most severe warning, for alert, the most severe warning, for a sliver that goes from south wales through cardiff across the bristol channel and into northern somerset, weston—super—mare, into somerset itself, across exmoor and dartmoor and into devon. that bright red zone that you will see on the maps that
we have already seen in scotland. notjust we have already seen in scotland. not just heavy snowfall we have already seen in scotland. notjust heavy snowfall but we have already seen in scotland. not just heavy snowfall but also high winds. emma storm is coming from the bay of this gate across the south. —— survey of biscay. it means high winds and drifting conditions, blizzards. the question is working out where that will happen. in this pa rt out where that will happen. in this part of the country there are remote rural communities and keeping roads openin rural communities and keeping roads open in those areas will basically be impossible. they are having to prioritise to work out which routes they can keep running. in most places it is a little bit of dusty snow right now but it will get much heavier as the day goes on and into the evening and then again tomorrow and potentially into tomorrow night as well. that is what they are worried about, not just as well. that is what they are worried about, notjust the instant snowfall, but the accumulation over hours and hours. it is the first red warning for snow that i can remember in devon and parts of somerset over the last few years. we have had read warnings for flooding, notoriously
four years ago, but it is the first one that level for snow, i think. that is the situation in the south—west of england. let's go to phil bodmer in yarm in north yorkshire. good morning. the snow in the north east is falling thick and fast. you can seejust the north east is falling thick and fast. you can see just how much there is on this car. that shows you there is on this car. that shows you the level of snow that we have had. police in north yorkshire are warning drivers not to travel if at all possible. driving conditions on many routes are abysmal. the a66 scotch corner is closed currently. lincolnshire police say drivers are being warned not to travel if they don't have to. pretty much every road throughout the county is impassable and gritters and snow ploughs have been out all morning. in yarm itself the main centre is clear and perhaps you can see on that shot that the road is clear. snow ploughs and gritters have been through all morning. leeds bradford airport has cancellations this
morning and there are problems on the railways as elsewhere in the country. if you are setting out today, the advice is to take time, make sure you are prepared, take extra clothing and a blanket if you can and be prepared for a longer journey than normal. thank you. we will keep you updated with the latest situation throughout the morning and a full weather forecast for you just before ten o'clock. now the rest of the news with annita mcveigh. good morning. theresa may will meet donald tusk for a working lunch this morning. tomorrow she is expected to release more detail of her vision for britain's future relationship with the eu. independent inquiry into child sexual abuse will publish its first completed report this morning. the findings will focus on the forced migration and abuse of
thousands of children, many of whom we re thousands of children, many of whom were in care, who was sent to australia, new zealand, canada and africa following the second world war. the british and australian governments have apologised but today's report is likely to condemn the programme and highlights the failure to detect and prevent the abuse. the home office says it is considering allowing a medical cannabis trial to treat a six—year—old boy with a rare form of epilepsy. it previously turned down requests by the family of alfie dingley, from warwickshire, to legally take the drug. but now ministers say they are exploring every option, following a meeting with the family. an option could be a three—month trial, led by alfie's doctors and based on sufficient and rigorous evidence. for the first time acid is described as a highly dangerous weapon “— in new sentencing guidelines. the advice forjudges and magistrates
in england and wales has been updated in the wake of a surge in attacks using corrosive substances. offenders are now likely to face stiffer penalties. the american retail giant walmart says it will tighten its policy on firearms sales as donald trump tells congress it's time to act. the president stunned some politicians in his own republican party by telling them on live tv not to be so afraid of the pro—gun lobby. he said he wanted what he called a strong reform bill but stuck by his suggestion of arming some teachers. spotify, the world's largest music streaming service has filed paperwork to start trading its shares on the new york stock exchange. the swedish company which has a database of 30 million songs will undertake what's known as a direct listing letting investors and employees sell shares without needing an intermediary. spotify — which launched in 2008 — now has over seventy one million paying subscribers, with even more using their free advertisement supported service. shoppers have until midnight tonight to spend paper ten—pound notes featuring charles dickens before
they cease to be legal tender. the bank of england says there are still 200 million of them in circulation. they have been phased out since last september and replaced by polymer notes depicting jane austen. and finally there were 11 wins for the bbc‘s journalism at the royal television society awards last night including not one but two awards for this programme. victoria derbyshire was named network presenter of the year and she also picked up the gong for best interview of the year, for football abuse. congratulations, victoria. thank you. i want to thank you for following coverage of our stories on facebook and the bbc news website. we really appreciate your support. thank you. we really want you to get in touch with us this morning if you have experience of living with dementia, whether it is yourself or you care for somebody in your family oi’ you care for somebody in your family
or placement with this condition. it is one of the most pressing issues of our time. we are talking about it a lot this morning and we would love to hear your experience. we want to talk to you if you are happy to come on air. use the hashtag victorialive and if you text, you will be charged at the standard network rate. (ani off) let's get the sport. eddiejones has been talking about the physical and verbal abuse he experienced. yes, england lost to murrayfield in the six nations championship on saturday. he was returning south from edinburgh, got an early train on sunday morning. he was heading to manchester because he was a guest of sir alex ferguson at the manchester united match when they beat chelsea. it was on that train, travelling by himself in standard class, he got a bit of verbal abuse and he said it
was physical as well. this footage is when he got off the train and manchester oxford road, surrounded by scotla nd manchester oxford road, surrounded by scotland fans, who harangued him on the way to the taxi. we have taken out some of the swearing. shouting and cheering. he says that is it. he said he always liked taking selfies and engaging with fa ns taking selfies and engaging with fans but he will never take public transport again after that incident. he also pointed to the comments before the match from former international gavin hastings, one of the scotland prop is, talking about hating the english. he says that incites certain behaviour and that ties in. the scottish rugby union i appalled by the verbal abuse suffered by eddie jones appalled by the verbal abuse suffered by eddiejones and the disgusting behaviour of those involved. they say it does not
represent the values of the sport and the fans. the dignity eddie and the team showed on saturday is in stark contrast to this ugly incident. we hope not to see that again. of course eddiejones deciding he can't be seen like that in public again. there were lots of goals at wembley in the fa cup last night and people talking about the video assistant referee again. yes, spurs manager mauricio pochettino called it embarrassing. this was the fifth round replay against league one rochdale. spurs comfortable winners in the end but the first half was one var decision after another. the referee, paul tierney, the boys in his head graham stopped, the boys in his head graham stopped, the var for the night. the match was so stop and start. there was a penalty awarded with var and then ruled out and var used again for that. five minutes added on at the end of the first half for all those delays. is that really good for the game? here is the spurs manager.
delays. is that really good for the game? here is the spurs managerlj think we have the best referees in europe or in the world and the referees are so good. but i don't know if this system will help them oi’ know if this system will help them or create more confusion. if you watched this half, more confusion than help. football is the context of emotion and if we are going to kill this emotion i think we are going to change the game. mauricio pochettino was quite measured there. he would have been angrier if they had lost because it was 1—1 at half—time. then the snow fell and spurs raced away with it. fernando llore nte scored spurs raced away with it. fernando llorente scored a hat—trick in 12 minutes. the perfect hat—trick, right foot, left foot, head. spurs won 6—1 and they are into the quarterfinals and they will play swa nsea. quarterfinals and they will play swansea. and at the world cycling, we have another medal from the
kennys. we were looking forward to seeing them in action in the netherlands. six months after having a baby, laura kenny helped the women qualify second greatest for the team pursuit. there could be a medal later. jason kenny got the silver in the team spirit. he had an 18 month lay—off after the olympics and he thought about retiring. that was backin thought about retiring. that was back in 2016. but they came second to the netherlands. another medal round his neck. i will be back with the headlines in the next half an hour. we are talking about one of the most pressing issues of our time, dementia. dementia is caused when the brain is affected by diseases and can include symptoms like memory loss, difficulty speaking of thinking. by the middle of this century, 1.3
million people will be living at home with dementia in this country. according to new figures seen by this programme. alzheimer's is a form of dementia and the alzheimer's society expects the number to double by2036 society expects the number to double by 2036 and to keep on rising as the population gets older and treatments improve. later this year, the government will set out how to pay for social care in ourold set out how to pay for social care in our old age. three years ago, we gave video cameras to three people with dementia. we have gone back to them and asked them to do the same again. they are here with us this morning along with others living with dementia, some of their relatives and those who care for people with the disease. we will talk about what it is like to live with dementia and how we as a country can best pay the ca re how we as a country can best pay the care and those living with this challenging disease. first, here is a film they have made
for you. to my mind, my way of thinking... you happen to take any positive you can to having such a cruel disease. in 2040 quack —— in 2014, we gave video cameras to three people recently diagnosed with dementia. what are we looking at? it is the moon, isn't it? three years later, we asked them to look back at what has changed in that time. that is you talking. yes. this is the story of what it is like to live with alzheimer's disease, from the minds of the people most affected.
wendy mitchell was diagnosed with alzheimer's at just 57, wendy mitchell was diagnosed with alzheimer's atjust 57, in 2013. in herfirst set alzheimer's atjust 57, in 2013. in her first set of video diaries three years ago, she was still working as an nhs administrator. this is where i had my first experience of what dementia can do to your brain. i came out of my office and i didn't have a clue where i was. i decided to walk away and down the corridor, hoping that no one would come out and notice there was something wrong. and so i went through the end door and into the wash room. because that was the only door that was a locked door. it showed someone at an earlier
stage, someone left —— less hesitant than i am now, and simply talking normally. whereas now i have to think more about the words that are coming out of my mouth. wendy had to give up work earlier than she really wanted, she moved from a town house in york to a small village near one of her daughters. when i moved, all the houses looked the same, and i would get confused as to which one i lived at. i would co nsta ntly as to which one i lived at. i would constantly walk as to which one i lived at. i would co nsta ntly walk u p as to which one i lived at. i would constantly walk up my neighbour's path. so, to make it clear which house was my house, i simply put the —— put
forget—me—not tiles each side of my door, to show me which one was mine. i always like it to untangling a fine necklace. if you are having a good day, you can sit and untangle the notts won by one. if you are having a bad day, it is like when you are feeling impatient, and you simply cannot untangle it and the more you try, the worse it becomes. i always tell myself it is not me, it is the disease. and i simply sit quietly and wait for the fog to left. -- lift. yes, i stopped answering the phone, i don't know, properly a year or
more. when i answered it, people can't see me, so they can't see me thinking. i now prefer to e—mail or text. when i type, it is as though dementia has never entered my life because that pa rt never entered my life because that part of me isn't broken yet. if you are going to give one piece of advice to someone who has just been diagnosed with dementia, what would it be? i always think of it as, yes, it is definitely a bad diagnosis to get but if you can think of it as a different life, a life of adapting to the challenges that dementia throws at you, then it can still be filled with laughter and adventures
and almost a new way of living. it was the most amazing experience because i have no fear anymore. i a lwa ys because i have no fear anymore. i always think i face my biggest fear by facing dementia. keith oliver was diagnosed with alzheimer's in 2010. in the first set of video diaries he filmed for us set of video diaries he filmed for us he had just retired as a head teacher in canterbury. for some time i have struggled to a member by that i have cleaned my teeth, shade, combed my head in the morning when i get up. so what i now do is morning when i get up. so what i now doisi morning when i get up. so what i now do is i put everything out of the box, use it and as i have used it plays it back in the box again. i have changed in some ways and some
of those changes have been brought on by dementia. i see the same person who physically looks like me, who is saying the things i was saying at the time, and i still believe in. but now i feel less able to express myself as well as i did then. it isa then. it is a lovely walk, this, along the beach, and then around the harbour. i get such a lot from it. it gives me time to think, to contemplate, to try to sort something out in my mind that are bothering me. watching these boats rocking in the water reminds me of how some days it is for me walking and standing and trying to keep my balance. any experience of dementia i have
sometimes brought on by being depressed, by being isolated, being lonely, frustrated. they are the best friends of each other. dementia and depression are big allies and the only way dealing with that is through support, people coming into my world to help me. books have always been important in my life, for relaxation, learning. i ama my life, for relaxation, learning. i am a hoarder of books. here is one that i read a couple of years ago about something very close to my heart which is nottingham forest. reading the books 30 years later brings back those memories that i have of those happy days.
it is getting harder. i read a lot but remember very little. i even don't remember what books i bought, there are occasions i go into a book shop and i have bought the book home and realised at home i have read it before. some days i will use the metaphor of the weather, some days are faulty and even within those foggy days it is like driving in fog, the fog comes down and it lifts, it is patchy. that is what dementia is often like. even today, i am experiencing that talking to you. some of my charity of thinking is coming and going as i am sitting here now, talking and thinking about today. i have lost my train of
thought, you will have to ask me that again. last time around i finished the interview asking if you would remember our conversation, will you remember our conversation, will you remember this conversation? again, the same answer, i will remember how this conversation made me feel. the actual subject matter, no, i won't. christopher has been living with alzheimer's for more than a decade now. his wife veronica filmed this first set of video diaries outside their home in dorset three years ago. at some point, it hit you over there, that is when you have to decide what to do. yes, you had to cope. there is ask, do you recognise us?
you are looking rather severe, like a magistrate! that is you talking. yes, i mean, everything has changed. it is so sad. but you mustn't dwell on that because otherwise you would be sad all the time and i mustn't be sad to you because you are positive. what has changed, do you feel different? yes. and you know you still have lots of feelings although you may not be able to put it into words like you used to. we are on the quay paul harbour, sitting in the sunshine —— poole.
and christopher is having fish and chips. it is not the easiest thing to eat. we are now in the car. the seat belt is always a bit of a mystery, put your belt on, darling. can you put your belt on, darling. can you put your belt on, darling. can you put your belt on? put your belt on. your belt. here, that is right. that is right. like everything, this gets forgotten every single time. well done, you have done it. without that disabled badge? life would be a lot more stressful, yes. when we first got the blue badge, i was a little bit feeling, it says disabled on it, and christopher doesn't look disabled, so
christopher doesn't look disabled, sol christopher doesn't look disabled, so i was sort of half thinking somebody might one day a cost us, which happened. you are not disabled, this man said, as we were parking. so i left christopher on the pavement and i trotted down the pavement and i said to that, repeat that. and i said it louder, very slowly he mumbled, you are not disabled. you change places with me 24 hours hutcheon for 24 hours —— you change places with me for 24 hours. don't take it, darling, drink it, careful. it is hot. that is your tea. that is right. are you a caper that? are you happy, darling, i are you a caper that? are you happy, darling, lam are you a caper that? are you happy, darling, i am asking if you are happy? i don't think you frustrated.
sometimes i think he is frustrated, yes. sometimes you get cross. not often. all you basically happy? yes. yes, ithink often. all you basically happy? yes. yes, i think you are. this is one of the things i am deeply sad because i don't have a name. what i called? and he laughs, and he says, what did you say? what ami and he says, what did you say? what am i called? are you going to have another go? what am i called?|j another go? what am i called?” can't remember. the fact that christopher's speech is clearly not what it was, i mean,
speech and communication... is clearly not what it was, i mean, speech and communication. . .m is clearly not what it was, i mean, speech and communication... it is lonely, yes. it is quite lonely. but then he doesn't realise that. so it's not as though you are living with somebody who is doing something to make you feel like that. it's not like that at all. you see, there is definitely interaction and feeling. that hasn't gone. if i say i love you. do you love me? do you love me? ami you. do you love me? do you love me? am i getting too close? go on, kiss me. yes. wow. gosh. with us now is an audience including some of the people that you saw in that film and there is a mixture of emotion in this room, i think. there are some people wiping their eyes because they had tears in their eyes. veronica, you have tears in your
eyes but you also smiling, as is christopher. hello, christopher. thank you so much for coming on the programme again. how do you react to what you have seen? i don't mind who speaks first. i rally watch myself on the television now. —— i've rarely watched myself recently. it is always a shock what i see. we don't have this image of ourselves in our head which is what i see on the television. were you shocked? yes. i never watch myself normally. and you always tend to think back to how you were, especially when there was the comparison with the earlier film and now. itjust brings it home a little bit more, the changes. what
is it like for you and christopher to watch yourselves then and now?” think we've filmed some jollier bits. those bits are rather tear—jerking. it isn't as bad as that, is it question that —— it isn't as bad as that, is it? we have a lot of fun. that is where we used to sail. we get about. we went to mexico this summer. why not? the other thing to say as well is that the film illustrates how different we all are but how similar we all are as well. there are certain things that we said and we have experienced that are common to all of us in that film but also the way we deal with it is an element of similarity but also different as well. over the course of the programme we are going to talk about living with dementia. how we pay for
such care and its impact on the health service and society in general. you get in touch through the programme if you or a family member has dementia. still to come: how is the cold snap affecting people that struggle with their bills? we'll hear from people affected by fuel poverty and discuss what help is on offer. ourfinal visit to hawkswood primary pupil referral unit, as i talk to some of the children about life at the school and their hopes for the future. time for the latest news. the bbc news headlines this morning: the met office has issued a red weather warning for devon, somerset and the southern half of wales, meaning imminent loss of life is possible. a separate red weather warning is in place for scotland's central belt. the snow continues to cause problems across the uk. hundreds of schools are closed in south wales, southern england and scotland. our reporterjohn kay sent us this from truro. the latest warning has come from the
met office saying that they still believe this is going to be a very bad storm in this part of the country. they have issued this red alert, severe, the most severe warning, a red warning for a sliver that goes from south wales to cardiff, across the bristol channel, through north somerset, weston—super—mare, down through some assert itself, across exmoor and dartmoor and into devon. that bright red zone that you will see on the maps all day. in scotland hundreds of people have been trapped in their ca rs of people have been trapped in their cars on the m18 a glasgow. some attract for 15 hours. others have been stranded in lincolnshire and forecasters are warning of snow to come across the uk. where the red alerts remain in force, people are advised not to venture out. in other news: the president of the eu council donald tusk has warned uk
can't have trade with the eu if it is outside the single market and customs union. the warning comes following the publication of the eu's draft withdrawal treaty. the independent inquiry into child sexual abuse will publish its first completed report this morning. the findings will focus on the forced migration and abuse of thousands of children, many of whom were in care, who were sent to australia, new zealand, canada and africa following the second world war. the british and australian governments have apologised but today's report is likely to condemn the programme and highlights the failure to protect and prevent the abuse. this programme has discovered new figures which underscores the scale of suffering of those living with dementia. the home office says
it is considering allowing a medical cannabis trial to treat a six—year—old boy with a rare form of epilepsy. it previously turned down requests by the family of alfie dingley, from warwickshire, to legally take the drug. but now ministers say they are exploring every option, following a meeting with the family. an option could be a three—month trial, led by alfie's doctors and based on sufficient and rigorous evidence. the american retail giant walmart says it will tighten its policy on firearms sales as donald trump tells congress it's time to act. the president stunned some politicians in his own republican party by telling them on live tv not to be so afraid of the pro—gun lobby. he said he wanted what he called a strong reform bill but stuck by his suggestion of arming some teachers. there were 11 wins for the bbc‘s journalism at the royal television society awards last night including two awards for this programme. victoria derbyshire was named network presenter of the year and she also picked up the gong for best interview of the year for football abuse.
that's a summary of the latest bbc news. thank you for your messages about dementia. this emailfrom mark: i look after my mum who was diagnosed with outsiders several years ago. the council have been a huge help but i have experienced the whole ca lyx but i have experienced the whole calyx of life in the modern world in the uk which breaks down when it comes to dementia. i have difficulty proving my mother's identity, visiting her, connecting different ca re visiting her, connecting different care services together. i keep getting referred to online help and even after expelling to people that my mother has alzheimer's, they still try and ask her memory questions. i care for my mum because it isa questions. i care for my mum because it is a pleasure but it hurts that there is little recognition in even things like tax codes that recognises that in fact looking after a person with advanced dementia is a far more stressful and training thing than looking after children. catherine says: i am one
of the lucky ones. as i am self—employed and my dad has a reasonable pension, while we struggle financially, i am able to ca re struggle financially, i am able to care for my dad myself. both my pa rents care for my dad myself. both my pa re nts ha d care for my dad myself. both my parents had dementia and i care for them both, starting in 2012, until my darling man passed away in 2015. iam54 my darling man passed away in 2015. i am 54 and single. —— my darling mother passed away in 2015. i love them more than i can say. we now live with my dad. the problem is u nless live with my dad. the problem is unless you have the money, it is a lottery a nd unless you have the money, it is a lottery and the social care system is broken. my heart breaks for those without family for whom life with dementia must be unbearable. we are going to talk about some of those specific issues, the fractured health and social care system, and the difficulty in getting outside help after ten o'clock this morning. please continue to send your own experiences. sent us an email. you can message us on experiences. sent us an email. you can message us on facebook and whatsapp as well. now we have more sport. hello. the headlines: the
england rugby union head coach eddie jones said he was physically and verbally abused returning by train from the kolkata defeat to scotland at the weekend. this is footage of him being harangued at manchester oxford road train station. —— calcutta cup defeat. the scottish union said it is disgusted and appalled. eddie jones said union said it is disgusted and appalled. eddiejones said he will not take public transport again. manchester united beat rochdale 6—1 —— tottenham hotspur beat rochdale 6—1 and will now play swansea in the quarterfinals. andy murray could be backin quarterfinals. andy murray could be back in the practice court that the end of this month. as since is time olympic champion jason kenny end of this month. as since is time olympic championjason kenny won silver in the team sprint at the track cycling world championships in the netherlands. his wife laura will be bidding for a medal in the team pursuit later today. i will be back after ten o'clock. thank you.
hundreds of drivers have spent the night stranded in snow on the m80 and adjoining motorways in central scotland. some have been stuck for more than 15 hours. others have been stranded overnight near skegness in lincolnshire and forecasters are warning of more snow to come across many parts of the uk. yesterday, we invited bryan, a homeless man living on the streets of central london for 18 years, into our studio. this was him yesterday afternoon as snow continued to fall in the capital. he told us he'd worken up yesterday morning with one inch of snow all over him. he was also incredibly grateful for all your messages of support you sent him. we will keep in touch with him. many people living at home struggle too. one in ten people in england live in fuel poverty. that's where the amount a household pays for fuel leaves them below the poverty line. when weather drops below a certain level it triggers extra payments for people claiming some benefits.
but many don't know about it and therefore don't claim. who is entitled ? you have to be over 65 and also qualify for pension credit. how much? you get up to £300, depending on age. how to claim. most get it automatically. some have to claim. for details, see gov.uk/ winterfuelpayment. cold weather payments. let's talk tojodie hullah, a mum of a 19—month—old, who sometimes can't afford
to heat her home. andria efthimiou has asthma and ended up being hospitalised when her home got too cold. and ruth london from the charity fuel poverty action. thank you for coming on the programme. how often do you go without hot water and heating? sometimes it can be two or three days. other times it can be longer and other times shorter. it all depends what the weather is like and when i get paid. explain why you have to make the decision to keep heating and hot water off in certain periods. just because we can't afford it. i put as much money as i can onto my meter and sometimes it is not enough. we ran out of gas and then we have no hot water is heating ori then we have no hot water is heating or i have to make the decision whether will we be cold during the
day or in the evening. how does that affect your 19—month—old? day or in the evening. how does that affect your 19-month-old? she gets body quite a bit. at the moment he has a cough and cold and it is hard but there is nothing you can do about it. you had to give up work when you are pregnant because of various pregnancy issues. you are in a privately rented flat and universal credit is paid to you and after rent you are left with £100 a week for food, gas, after rent you are left with £100 a week forfood, gas, electricity, clothes, anything 2.555, , week forfood, gas, electricity, clothes, anything - $559 child i the cold weather payment means an extra £25 for you, what difference will that make? i think it means we will get an extra two days of heating and hot water. how do you feel about that?” water. how do you feel about that? i don't know. the situation is there isn't
much do —— much i can do to change it. it is one of those things you get on with. you don't have a choice. jodi, iam choice. jodi, i am going to bring in andria in the studio. is your attitude the same, it is what it is? absolutely. you don't even notice what is happening. for example, my daughter started coming home from school and going straight to bed. i thought she was hiding from me. she said she was cold. i was really shocked. because the me it is called but you get into a trooper load. i have had asthma the over 50 years. —— trooper mode. even though i have
had to go to casualties because of my respiratory system, it becomes a way of life. but this is dangerous. they wanted to take me in, i was worried about my daughter. if you're respiratory rate is at 48, people have heart attacks. they gave me some diazepam. is that directly linked to you not putting the heating on? absolutely. it is tough. but it is difficult to notice. and knowing other people are in a more difficult situation because of money. it is tragic. thousands of people are dying from fuel poverty every year. then something is really wrong. in terms of deaths from cold weather, we have the latest figures
from 2017, sorry, 2016, over that winter period. it was 11,000 last winter. it is outrageous, it should not be our way of life that people are dying because they cannot afford to keep their homes warm. some of the chief executive is earn more in their bonus and most people spend all year on their energy. it is not sustainable. there are natural disasters and unnatural disasters. fuel poverty is an unnatural disaster. people having the cladding removed, put on their buildings, because it was not safe, like g re nfell tower. because it was not safe, like grenfell tower. now they are freezing because they are in tower blocks with no protection from the elements. that was installation. cladding and
installation are vital to keeping homes warm —— insulation. if you look at the weather now, climate change is also an unnatural disaster. if we are going to keep warm, the other extreme is heat waves, if we are to survive we need to address that and the prices people are paying and the terribly low levels of income, the fact people cannot afford to keep their home one, people on benefits, then they get sanctioned and had nothing at all to put in the meter. and you lose your heat, the food in your fridge and freezer, your ability to charge your phone, the things our daily lives depend on, these are not
things we should say, that is life, i have to get on with it. we have to change that. the government would say they are bringing in environmental measures. and they would say they will cap fuel bills which will help. it has taken a couple of years since they started talking about it. it depends how much the cap on energy bills is. they say energy prices are about to go up again which could wipe out the difference. we do want a cap but it is not a solution. energy is much too important to be left to the fans ripping us off as the government has said. one comment, the winter fuel payment is positive but not enough, those of us is positive but not enough, those of us who are low paid and in work simply take the hit driving us
further into poverty. it is heat or eat. for anyone watching now struggling to keep warm, what is your advice? it is hard to give personal advice. everyone has thought of the immediate solution, hot water bottles, insulating foil behind the radiators, draught proofing is important. make sure you are on the best tariff you can find. if you are in debtand best tariff you can find. if you are in debt and struggling to repay, sometimes you can adjust the rate of repayment so you are paying a bit more in summer but less now. there are little things. but the bigger things that the individual can't do, is to deal with the energy crisis, the benefits sanctions, the low income, the fundamental cause, lack
of insulation in our homes, bad boilers, and ultimately climate change. thank you. coming up. how to deal with an ageing population many of whom have dementia, a huge rise in people expected to be living with dementia in the next years, we will hear from people living with it. all this week, we've brought you an insight into the work of hawkswood primary pupil referral unit in north—east london. it's a place where children as young as four are taught when they are in danger of being permanently excluded from their mainstream schools. for our last film this week, i caught up with some of the children at lunchtime to talk about life at the school and their hopes for the future.
i met seven—year—olds logan and kyan, along with andrew who's nine. so where do we go first? so we go here. come on. do you know my favourite fish? what's your favourite fish. tuna, definitely. 0h! hi, guys. how's it going? how do you find it here at the school? it's a good place. it helps you to behave. you get guidance, and miss mannakee is a very good teacher. is she? yeah. and she shows tough love. tough love. what does that mean for you, what does that mean? well, tough love means, um, it's pretty tough, it's discipline. if you're being unsafe, they restrain you.
they restrain you. has that ever happened to you? it has happened a lot of times. it isn't very nice. it's not comfortable. andrew, are you going back to mainstream school soon, is that right? how do you feel about that. well, ifeel good, happy that i've come a long way, and now i'm going back to mainstream, because miss mannakee has helped me since i was in year three. ah. can you remember what you used to be like? i used to think i was just bad, if anyone does a little thing, sticks their tongue out of me, i used to flip. but now ijust ignore. now i just ignore and tell the teacher. i don't fight any more. and what about you? why do you think you used to get cross or angry, or anxious? every time it was a different reason, but now ijust feel i made the choice to do it now.
so you make good choices now. yeah. but sometimes i do it a little bit. only like a tiny bit. i don't do a big big reaction. logan, what about you? i used to get restrained so much. and andrew, can you remember why you used to get cross and angry when you were in your old school? what do you think was going on? um i wanted my own way. i knew i had anger issues but any little thing i used to get angry at. i didn't know why. but since i've come here my behaviour has improved a lot. when i mean a lot, i mean a lot. yeah? brilliant. if it wasn't for miss mannakee i'd probably be the same... do you feel proud of yourself? yeah, but i mostly feel proud of miss mannakee for helping me.
ah. that's a very, very lovely thing to say. very lovely. how does your mum think you've got on here? she's very proud of me, i've improved. wow. do you feel calmer as well now, would you say? not with... you still don't like that... do you? when miss mannakee told me to actually try dinner i actually liked it. so that's another thing that miss mannakee helped me with. is that miss mannakee? that's miss mannakee there. 0k. miss mannakee. i'm hearing a lot about you. yeah. they are, they are loving you, i have to say. yesterday when i went home, i heard mum say, i don't know how you've dealt with me, like she doesn't know how i learned this quick. did you explain to mum how you managed to learn quickly? you need to tell me why you learned quickly.
because of your tough love. because i gave tough love, and what else? what did you need to do? give up and start crying? what did you do. never give up. oh, i love that. i say that to my kids, never give up. so listen. i'm done. look at you eating your apple, good boy. thank you so much for inviting me for lunch. it's ok. thank you. it's been really, really lovely to meet you. i'm just going to get some pudding now, would that be all right? miss, please may i go up? thank you. and thank you so much to the staff and pupils at hawkswood primary school who opened up their doors to us. let's get the latest weather update with carole. it has the potential to be the
cold est it has the potential to be the coldest day in march in the uk ever? that is right. as well as that, we have also got a few weather warnings. one which is about to expire across central scotland, tayside and fife, but anyone for heavy snow and blizzards across devon, somerset and south wales. we are about to lose the one across central scotland but we still have amber be prepared in all these areas including northern ireland, for snow which will be blowing and feeling bitterly cold. an amber warning across the south—west, hampshire and the south coast, for snow and wind but this is the red one, the top level of warning the met office ever issues.
if you are out, bear that in mind, there will be some atrocious conditions with blizzards, blowing snow, because the wind is gale—force winds. through the morning, we will continue with the snow, across southern england, through wales and the potential for significant snowfall across areas in that red morning, up to 20 centimetres, about eight inches, plus more than double that in some areas. moving northwards, the risk of another dangerous element, freezing rain. we have strong winds, these temperatures may be what you see on your thermometer but wait for the wind chill, it will feel more like -13 wind chill, it will feel more like —13 in birmingham. wrap up warmly is
the message if you are stepping out today. heading into the evening, we still have snow across the south—west, wales, snow showers across the north and east, a keen wind, some drier conditions, the risk of freezing rain, and a cold night, temperatures well below freezing. tomorrow, a little bit of let up in amounts of snow but it will still be snowing, with showers across the north and east. through the day, this snow will drift slowly north eastwards. later in the afternoon, we think the snow will be in a line from london up to liverpool bay and all points south, with a lot of snow across central areas. if you are out, bear that in mind. across central areas. if you are out, bearthat in mind. it across central areas. if you are out, bear that in mind. it will feel better. for the weekend, out, bear that in mind. it will feel better. forthe weekend, it out, bear that in mind. it will feel better. for the weekend, it will still be cold but less in the south.
nonetheless we are still looking at the risk of snow, perhaps not as heavy. hello. it's thursday. it's 10 o'clock. i'm victoria derbyshire. our top story today — a second red weather warning has been issued for heavy snow, this time for south wales and south west england with more snow expected across the uk. it isa it is a little bit of dusty snow right now that it will get much heavier as the day goes on and into the evening and again tomorrow and potentially into tomorrow night as well. that is what they are worried about. not just the well. that is what they are worried about. notjust the instant snowfall but the accumulation of hours and hours. we will speak to some of you affected by the weather. and also an employment lawyer who will tell you your rights if you can't get to work because of bad weather. it is a condition that will affect 1 million people in the uk by 2036. we look at the pressures of living at home with dementia for the individuals and
their loved ones. what am i called? 0h. their loved ones. what am i called? oh. are you going to have another go? tell me what i am called.” can't... go? tell me what i am called.” can't. .. you go? tell me what i am called.” can't... you can't remember. you can't... you can't remember. you can't remember what i'm called, darling. we will be joined by this group of people who all live with dementia or are professionals working in the field. if you care for a relative with this condition we definitely want to hear from you this morning. please get in touch in the usual ways. the home office considering allowing a medical cannabis trial to treat a six—year—old boy with a rare form of epilepsy. we'll speak to alfie dingley‘s parents before the end of the show. here is the latest bbc news with annita mcveigh. good morning. the met office has issued a red weather warning for devon, somerset and the southern half of wales meaning imminent loss of life is possible.
a separate red weather warning is in place for scotland's central belt. the snow continues to cause problems across the uk. hundreds of schools are closed in south wales, southern england and scotland. phil bodmer is in yarm in north yorkshire. the snow here in the north east is falling thick and fast. you can see how much there is on this car, and that just shows you how much there is on this car, and thatjust shows you the level of snow we have had. police in north yorkshire are warning drivers not to travel if at all possible. they say driving conditions on many routes are abysmal and the a66 that scotch corner is closed currently. lincolnshire police say once again drivers are being warned not to travel if they don't have to because pretty much every road throughout the county is impassable. gritters and snow ploughs have been out all morning. in yarm itself, the
main centre is clear. you can see on the top shot now that the road is clear. snow ploughs and gritters have been through all morning. leeds bradford airport has some cancellations this morning and there are problems on the railways as elsewhere in the country. if you are setting out today, the advisers to ta ke setting out today, the advisers to take time. make sure you are prepared and take extra clothing a blanket if you can and be prepared for a longerjourney blanket if you can and be prepared for a longer journey than blanket if you can and be prepared for a longerjourney than usual. thousands of people in scotland have been trapped in cars in scotland overnight on the m80 in glasgow. some were trapped for 15 hours. others have been stranded near skegness in lincolnshire and forecasters are warning of more snow to come across many parts of the uk. where the red alerts remain in place, people are advised not to venture out. in other news: the president of the eu council, donald tusk, has warned uk can't have frictionless trade with eu european union if it is outside the market and single —— customs union and single market. this programme has
uncovered exclusive new figures that underscore the scale of the challenge of people suffering from dementia and their carers. by the middle of the century, 1.3 million people will be living at home with dementia in the uk, a sharp rise from the 540,000 currently living with dementia at home. for the first time acid is described as a highly dangerous weapon in new sentencing guidelines. the advice forjudges and magistrates in england and wales has been updated in the wake of a surge in attacks using corrosive substances. offenders are now likely to face stiffer penalties. the american retail giant walmart says it will tighten its policy on firearms sales as donald trump tells congress it's time to act. the president stunned some politicians in his own republican party by telling them on live tv not to be so afraid of the pro—gun lobby. he said he wanted what he called a strong reform bill but stuck by his suggestion of arming some teachers. there were 11 wins for the bbc‘s
journalism at the royal television society awards last night including two for this programme. victoria derbyshire was named network presenter of the year and she also picked up the gong for best interview of the year for the football abuse story. that is a summary of the latest bbc news. more at10:30am. thank you. summary of the latest bbc news. more at 10:30am. thank you. it must have been a good night last night because i have no idea where my glasses are. i have left them somewhere in the capital city of this country. we have so many messages from you about dementia. thank you very much. we will talk more about it in the next half an hour. this tweet says your report on life with dementia is a difficult but worthwhile watch. a lot of people with experiences of neurological conditions will recognise aspects of how it affects them. gary says moving stories from families in this living with dementia special. emotional in so many ways. rebecca had: so painful watching the dementia diaries on
victoria derbyshire. i can't imagine how it feels for the person and their partner. joe has emailed to say i am watching your programme and finding the focus on dementia very informative. it is brilliant, informative. it is brilliant, informative and also emotional. both my grandmother and mother—in—law had the condition. i saw them slowly lose their identity. it was soaked that. adam says: my mum had dementia from 2009 at 2014. what a destructive type of disease. it was so sad to have the shell of a loved one left over from a very loving mother. we coped as well as we could and so many restrictions. sadly her final week was made worse by appalling end of life care. the programme can only go to raise awareness of such a debilitating disease that affects more than just the sufferer. please tell as many people as possible. that is what we plan to do today. your experience is so valuable. we are going to hear from experts of people caring for
dementia sufferers and we will talk to experts who are looking at curing the disease, which is the aim one day but we are long way from that. if you want to get in touch, you are very welcome. use the hashtag. if you are texting, you will be charged at the standard rate. now the sport. the england rugby union head coach eddiejones said he was physically and verbally abused by returning by train from scotland on sunday. england lost their six nations match at murrayfield the day before. he suffered abuse on the train from edinburgh. this is footage of him at manchester oxford road haitian being harangued and sworn at by a group of men. “— harangued and sworn at by a group of men. —— train station. he then attended the manchester united match asa attended the manchester united match as a guest of sir alex ferguson before continuing his journey to london by train when he was abused again. our rugby union reporter chris jones is here.
again. our rugby union reporter chrisjones is here. this is quite shocking. part of eddiejones's modus operandi, he likes to engage with the fans and he likes having selfies. clearly this happened on a couple of legs of his journey south. he also pointed out some pre—match comments, from former players, a scottish prop, saying the england hating message, he says that insights certain behaviours. yes, and he also spoke about an interview that the great gavin hastings gave. he said scotland would love to win to rob eddie jones's he said scotland would love to win to rob eddiejones's nose in the dirt. some would say that is pretty freaked calcutta cup sparring but jones feels it created an atmosphere of animosity. jones was travelling south from edinburgh, away to the game at old trafford between manchester united and chelsea. we had bbc footage about him being accosted at manchester oxford road,
and british transport police have confirmed there was an incident reported on the train down from manchester to london. scottish rugby union have sent out a very strong statement saying they are appalled and disgusted by the reactions in the video. and the rfu, while welcoming the scottish statement, and appreciating their support, they will not make any further comment. they said that eddiejones said all he had to say yesterday when he spoke to the british newspapers. but they say he may not take public transport in this way again and they are going to make sure they can do whatever they can to ensure his security. they also point out that jones is keen to draw a line and the absurd and move on. thank you. -- draw a line under the episode and move on. mauricio pochettino says the use of var in their fa cup win at wembley against rochdale was embarrassing. referee paul tierney used the system which has been trialled in the cup competitions
this season to allow a goal, disallow a penalty and allow a penalty. five minutes of time added on at the end of the first half to allow for all the stoppages. the spurs boss feels the technology on this occasion has been having a negative affect on the game. it was 1-1 at negative affect on the game. it was 1—1 at half—time. a second—half hat—trick in the space of 12 minutes from fernando llorente so spurs go through 6—1 in the end. they will now face swansea in the quarterfinals. i will be back with the sport headlines a bit later. three years ago we gave video cameras to three people living with dementia to film their lives. they did so and they are back with us this morning along with others
living with dementia, some of their relatives, those who care for people with the disease as well. we will talk about what it is like to live with dementia and how we as a country can best pay for that care for this challenging disease. first, this isjim for this challenging disease. first, this is jim with for this challenging disease. first, this isjim with some facts and figures. the number of people being cared for with dementia in their own homes is expected to rise by 1.3 million by 2051 according to new projections showing by this programme. what impact will that have on health services and society in general? well, it is now thought one in every three people born today in 2018 will
develop dementia in their lifetime. it is already the leading cause of death for women in the uk and the second leading cause of death for men after heart disease. by 2040, it is predicted more people will die of dementia in this country than all cancers combined. then there is the cost to society, currently put at £26 billion a year in care and treatment, which again is expected to double by 2040. at the moment, most of that cost is paid for by the people with the disease. if you live in england or northern ireland and you have assets over £23,250, you are currently expected to pay the social care bill yourself. the rules are slightly different in wales and scotland, where the amount is zeb taia. this summer the government should start the process of reforming the entire system in england. as for the cost to the
health service, one in four hospital bedsis health service, one in four hospital beds is now used by someone with dementia. 69% of people living in a private care home have the condition. it is notjust about those living with the disease. 25 million people in this country now have a family member or close friend with dementia. 700,000 directly care for somebody affected. both members that are set to increase rising over the next 50 years. can i introduce you again to wendy mitchell, keith oliver and christopher, who are all living with dementia and have been filming their lives for you? veronica is christopher's wife. jennifer is also here. she is a gp who has been diagnosed with dementia. and we have got brenda over here. she was diagnosed three yea rs over here. she was diagnosed three years ago. she is with her husband stephen. we will introduce you to some of our other guests in the course of the next half an hour. i
wa nt to course of the next half an hour. i want to talk to you about the challenges of living with dementia. one example is when you were accosted after parking in a disabled space? it was rather embarrassing. maybe the gentleman who accused us, with dementia, you don't look disabled, you don't look ill. christopher can walk which used to be a criteria for the blue badge. the stress of going places, big car parks is taken away by the blue badge, it is essential. the government is running something, looking at it again. is there a stigma surrounding dementia? you are nodding? i think there is a great stigma, i am afraid. people do not talk about dementia a lot of the time. why is that? a lot of people are
very frightened of dementia. what you have shown in these films is it is not frightening, it is part of life, and a lot of people are going to have some form of dementia. we must get used to it and accept it and talk about it. if you avoid talking about it, you avoid the understanding of all the people around you. we want everybody to make this country dementia friendly so we make this country dementia friendly so we welcome people with dementia, we talk about it, we change policies to make sure people with dementia and those who care for them, people like veronica, have an understanding relationship with neighbours, with police, with shop assistants, with people we come across every day. wendy, you are an incredible
illustration of living with dementia, and the adjustments you have made, including moving house. did you want to move house? did you want to move house? did you want to move house? did you feel forced? no, i was definitely forced. dementia forced me in one way because i used to live ina me in one way because i used to live in a busy centre of york. and i hope eve ryo ne in a busy centre of york. and i hope everyone realises dementia isn't just about memory, but lots of other senses are affected as well. and hearing was one of my first. itjust became too chaotic, it made me anxious to be in that busy situation which i used to love. so, i had to move somewhere quiet. but also financially, i still had a mortgage when i was diagnosed. people often forget, when you are
diagnosed, you still have a mortgage, young children, i was working. so no one would have given mea working. so no one would have given me a mortgage under those circumstances, with living alone. so i had to move to a cheaper part of the country to be able to still have a house. what about other experiences? ina what about other experiences? in a long—distance sense, you look after your mum who has dementia, who is 91. she has been in care for over six years. before that she was living alone at home. i would say with symptoms of dementia for up to 20 years. people assume that dementia is all about memory loss, getting confused about names, dates, money. that is part of it. in her case, she has mixed alzheimer's and vascular dementia. troubling symptoms were
along the paranoid spectrum, having fears and delusions, irrational emotional responses, the kind of things that come and go. you can't obviously point to them as a disease. sometimes it seems like an irrational flare—up in your relationship and then you move on. cani relationship and then you move on. can i ask how you managed to get your mother into a care home? it was immensely difficult, too hard to explain in a sound bite. it was a long process and i wouldn't have been able to do it if she had still been able to do it if she had still been able to be independent. it was only when she got into crisis. she wasn't safe to be left on her own. and going out, driving, not being visibly disabled, our life had shrunk down. by that time, the only places we could go well where i could park right outside and go
straight in because i couldn't leave her to park the car somewhere else. effectively you had to use subterfuge to get your mum into care? pa rt of care? part of her symptoms are she hasn't been able to recognise the symptoms herself. she would be antagonistic to anyone raising it. understandably because if you think someone is raising an issue you are afraid of but you don't think it is an issue at all, of course you would be angry. i could never plan things with her. everything i organised for her, in the end i did behind her back with social workers, clinical psychiatrists, occupational therapists, ultimately with the care home. all of us employing a degree of subterfuge to get her to accept the things by that stage she needed. jennifer, was it you who found yourself wandering along a bridge?
you are going to a tube station and you found you weren't in the right place and didn't know where you work? —— know where you work? ididn't work? —— know where you work? i didn't know where the exit was on the platform. i kept going up and down the bridge because i didn't know. so many people say we look all right and don't understand how difficult life can be. and who helped you? nobody, until the person waiting to meet eventually came to find me. by which time the station was deserted and i we re time the station was deserted and i were still wandering up and down over the bridge because i did not know how get out. can i add, there was an important word, rationality. that is one of the things you mention robs me of sundays. i find it very alien from what i used to be
like. an example is, the other day, i felt nobody cared. it was a really foggy day and i sensed nobody cared. my consultant came to visit me at home because i wasn't well. this is my psychiatrist. and i gave him all guns blazing about howl my psychiatrist. and i gave him all guns blazing about how i felt nobody cared. i felt horrible because this poor chap has come to see me at home and he truly does care, and i spoke about not caring. i did clarify, it is the system that appears not to care. the individuals within the syste m care. the individuals within the system are giving an enormous amount of care. we will talk about the system in a moment. you talk powerfully in the film about depression and dementia being best friends, give us an insight?” depression and dementia being best friends, give us an insight? i have never had depression in my life and
when i was first diagnosed, the consultant, he didn't give me any prescription for the uptime is but an antidepressant. i took the description but i never cashed it. i have never ta ken an description but i never cashed it. i have never taken an antidepressant. when i did become depressed because of the dementia i remember saying, ifi of the dementia i remember saying, iflam of the dementia i remember saying, if i am going down i want my eyes open. because i don't want the cloud to be made even more so by the medication. i did come out of that. because of the people that surround me, my wife, my family, and those professionals who are doing their best to help me. i want to show you a little clip of wendy in a glider. when was this,
last year? probably, yes. stupid question on my part! let us play you this. how good was that? that was amazing. did you have some of the people saying to your daughter, are you sure she will be all right? i remember distinctly because of the powerful emotion it makes you feel. i was stood next to them, and the pilot and technicians spoke to my daughter and said, is your mum really capable? will she ta ke your mum really capable? will she take all the controls? is that because people sometimes think dementia equals madness? when people think of dementia they often think of the end stages and they forget
there is a beginning and a middle and so much living to be done. all the time. so they were just assuming i had no control over myself. luckily, my daughter said, why don't you ask her, she is stood here! once we had got over that initial barrier, they started to relax a little but it wasn't until we were up little but it wasn't until we were up in the sky and i was taking photos and talking that i could see the pilot behind me visibly relax and start talking to me, instead of wondering how on earth much longer it was before we got down again. fantastic. i want to ask carol if you could introduce your organisation, about the current state of research into dementia, treatments and cures, before we talk
about care for people with dementia in this country. i am the director of alzheimer's research uk, funding research from really early scientific research all the way to the clinic. we are making significant progress. we don't have a cure but we are making progress. we understand a lot more about the pathology behind these diseases, about the genetics, we understand a lot more about the processes which provides targets to develop drugs. there are many drugs in development. we all hope they will show effectiveness and benefit in patients. is there anything on the market now to help people manage their dementia? there are symptomatic treatments on the market now. these treatments are effective ina now. these treatments are effective in a proportion of people but not everybody.
what do they do? they slowed down the decline in memory loss and the appearance of behaviours. they don't have any effect on disease modification. they don't slow the disease process or stop it. but they really help with the symptoms. they don't work in everybody but in some they work for a significant period. brenda hello. thank you for being so patient. diagnosed three years ago and involved in medical trials. if you say so, yes. can you tell us a little bit? it gets me out of the house and i go to various places, with stephen, of course. and sometimes i am looked from head to toe, other times they ask me questions, but i don't really
remember what has happened will stop ijust go with the flow. remember what has happened will stop i just go with the flow. can you tell us a little bit? to go back, brenda says she goes with the flow. when she was first diagnosed, she was very angry. after a few months she had an epiphany where she said to me one day, i am coming out, literally. and when she came out, she was completely different, all of the anger had gone, she didn't mind talking about it to people. yesterday we have to fill in lots of questionnaires for the research, we did one yesterday, asked on a scale of one to ten where do you consider yourself in happiness, where did you put yourself, do you remember? nearly ten. she decided on eight because she said there is room for improvement. but she always feels very happy. when she was first
diagnosed, it seemed to be automatic the patient is put on an antidepressant. brenda was angry, she wasn't depressed. it took a few months. we persuaded the memory clinic and doctor to take her off the antidepressants, there was no need for it. and she doesn't need it now. as far as the tiles are concerned, brenda does willingly volunteer for quite a few trials, some of which are sponsored by alzheimer's research uk. she is subjected to all sorts of indignities she is happy with, being hung up in answers, involved in balance studies, constant brain scans. it gets me out of the house. thank you so much. i want to talk about
the current state of care for people with dementia in the uk. one in four people in a hospital bed is someone with dementia. is that the right place for them? my dad died last year, in hospitalfor the last six months of his life. he was ina the last six months of his life. he was in a care home prior to that. the experience chimes with the subterfuge and going against his will, he would have rather stay at home, but my mum had cancer and could not care for him. once he went into hospital, the care home said they would not have him back because his level of need had increased to the point where they could not manage, which my mother died last february, so it
was down to me to look at care homes and pick one. i was quite surprised to find that wasn't the case. actually the care homes would come and assess him. so they pick you or not as the case may be? exactly. each time it was the same thing. they couldn't manage his night—time wondering. he was in a hospital environment which was not necessarily... it was an alien environment. it probably wasn't showing him how he would have been if he had been settled and familiar. he would be awake a lot of the night and sleeping during the day and he would get very agitated and he would wa nt to would get very agitated and he would want to walk up and down the corridor but because he was so confused and disorientated, somebody had to be with him all the time. the ward he was on was appropriate for people with dementia but in a risk averse way. but in an ideal world,
are you saying as experts, because of your personal experiences and because you are caring for someone or the organisation you work for, that being a hospitaljust because you have dementia is not the right place? absolutely. i work for the alzheimer's society and we know who people who stay in hospital with dementia can stay there from twice to seven times as long because the community support is not there. some of the numbers we have talked about, there are 500,000 people living in their own homes with dementia, and they have told the alzheimer's society that 85% would like to stay in their own homes for as long as possible. by 2050 we will have 1.3 million people living with dementia in their homes. their individual support needs need to be there. either we address them sensibly, more affordably in the community or we are going to have the greater crisis on the nhs which is avoidable. ago. people with dementia
can live in their own homes independently, individually, as you have illustrated and you are illustrating, but we have got to pay for professionals to go in and help them do what, for example? for professionals to go in and help them do what, for example7m for professionals to go in and help them do what, for example? it can be a whole range of support. as keith said, there is support for living with dementia and reducing isolation. you can have group activities and one—to—one support and as dementia progresses, it can move into the health needs, the health support. what we can but hope is now we have, withjeremy hunt, the health secretary, and he is responsible for health care and social care, and this is the first time the two have been put together and we need the resources properly but this is notjust this government but this is notjust this government but successive governments for 20 yea rs. but successive governments for 20 years. that is the challenge. mike, you run a care home. what is your view? i had something about care in the community? it is a challenge as well because it is about having enough staff to look after people in
their own home. there was a report last week which showed we cannot recruit enough people. it is not just care homes which has its own challenges but it is the community as well, making sure people have better care. you are a politician, crossbench peer, former director of age concern. how should we pay for this in the future? i thinkjeremy hunt has got to bring together health and social care funding. i think we have got to start using the taxation system to help us with that. very importantly. income tax? yes. national insurance? everybody? everybody who can. and we have got to encourage people to stay at home but that doesn't mean you're care workforce , but that doesn't mean you're care workforce, those people, have got to be properly paid, recognised as being indispensable in this sort of case. dave? it is notjust about
staff and professional carers. a lot of people living with dementia are supported by family members. particularly for people in black and ethnic minorities, they are being supported on a voluntary basis, either by family members or by neighbours or members of the community. the challenges they face, they don't really understand how dementia works. they are very worried about it. they often feel it is not something that they can talk about in their communities at all. i think that is an area that is really left out of a lot of the conversation when people talk about the cost of dementia, because they are bearing the cost of dementia out of their pockets every day. i want to bring in doctor eileen burns, a hospital doctor and president of the geriatrics society. where is the
best place for people to be treated, helped and supported, and how do we pay for it? we really need to start planning ina pay for it? we really need to start planning in a much more sensible and structured way than we have done today for the future population. we know that the population is ageing and we know in particular the very elderly group, the group in whom dementia is most prevalent, are increasing the fastest, and if we don't start planning now, we really are going to be in the soup, as my colleague said. we need to think about different models of care. currently many people with dementia end up in a hospital setting because something happens. perhaps they have a fall, they develop an infection, it may or may not be the best place for them at that time. sometimes people with dementia will need acute hospital care, just like any of us might do. if they don't need hospital care but there is a crisis, we need more alternatives rather than just we need more alternatives rather thanjust 909, we need more alternatives rather than just 909, ambulance, we need more alternatives rather thanjust 909, ambulance, a&e, hospital ward. in many parts of the country
that is the only pathway we have. we need alternatives to help people not going to hospital if that is appropriate and alternatives to help people get back out of hospital in a timely way. as has been mentioned, when people get stuck in hospital, they become less well, despite everything we try and do an hospital to avoid unwanted effects. we know this, politicians know this, the population knows this. it is grabbing at by the scruff of the neck and sorting it. those things you pointed out, we know, don't we? lam you pointed out, we know, don't we? i am frustrated in a way because i have been involved for 30 years and we have done a lot of talking. my fear is that there will be another delay when the green paper comes up. we have got to get on with it quickly. we are very good at talking in this country and not very good at action quick enough. the talking
ta kes action quick enough. the talking takes upfar action quick enough. the talking takes up far too much time. the public is saying enough is enough. we are expecting a green paper, government paper on social care in the not too distant future. ron occur? it is a long journey for a lot of people. —— veronica? the train, as people call it. at first the diagnosis is brilliant and there isa the diagnosis is brilliant and there is a lot of post diagnosis care, but as you travel on the train, i mean, christopher was diagnosed ten years ago and he had it two years before that while we try to find out what it was. we are getting to a stage where we want specialist clinical help. that is totally different from anything we have met so far. that is what we really need to stay at home. as you say, we can go into hospital for a short time but it is to be avoided as possible. everybody has
that experience. there are very few admiral nurses. the cinema, that is what we need. the funding of that end of it. there has been a lot of stuff about the beginning, you must get diagnosed and talk about it, it has become a thing, and we now need to grab the thing and sort it. for our children and grandchildren. sorry, keith. very briefly? it is appalling that such a significant disease as alzheimer's, at point of diagnosis you are then discharged! that is criminal and crazy. there is no care plan. i don't think most people know that. it is true. there is no care plan given for most people until they hit a crisis and thena care people until they hit a crisis and then a care plan is developed. that ca re then a care plan is developed. that care plan, i know from my experience of 35 years in education, if i had children in my care, in my school,
who required additional support and help, we would have a plan to give them that. we would give them that where it would make a difference. one final thought. i am so sorry. i will bring it back to the personal, ifi will bring it back to the personal, if i may? jennifer, go ahead. you are so right. we have got to get in at the beginning. doctors, with stroke, we didn't used to do very much but nowadays we do and we put a lot of effort into it and there is a window of opportunity at the beginning. it goes down as time goes on and it is the same with dementia. if we can get it right at the beginning and do something rather than just having a diagnosis, beginning and do something rather thanjust having a diagnosis, we can make a tremendous difference. there is so much that can still be done.” wa nt to is so much that can still be done.” want to thank you all, very much. dave, sally, tim, keith, wendy, christopher, veronica, carol, stephen, eileen, thank you for coming on the programme. we could have talked for longer, i know. i am
so grateful for your have talked for longer, i know. i am so gratefulfor your time have talked for longer, i know. i am so grateful for your time and patience this morning. thank you very much. and thank you for your comments. this email from jenny: very much. and thank you for your comments. this emailfrom jenny: i have never got in touch with you before but i wanted you to know about my mother who was diagnosed with dementia in 2010. it is a long story but i had to sell her home and she has been in a residential home for two years and now a nursing home for two years and now a nursing home for two years and now a nursing home for two more. the only thing she has left is an ability to swallow baby food and breathe. she does not know me or anyone else. it has been a battle all the way through. i really worry for people who have no one to fight their corner. when you contact social services, theyjust fight their corner. when you contact social services, they just tell you there is no money at the end of the conversation and you are left to sort things out. very scary for our futures. heartbreaking issue and so well covered by you this morning. thank you. this email from well covered by you this morning. thank you. this emailfrom glenys. my husband was diagnosed without same as five years ago. it is so true that every sufferer experiences
the disease in different ways. some people are very chatty when we go to alzheimer's society events, but some are very alzheimer's society events, but some are very silent. i thought my husband would watch with me and we could discuss it but he says what he always says when i suggest watching tv, i have seen this programme before and he is genuinely convinced that he has. unfortunately for me he has returned to his jigsaw puzzle. and from sally: my dad was diagnosed without thymus in 2013. i liken it to having a child. as time moves on you move into a different phase and you move into a different phase and you can hardly remember the days before and it becomes normal. it is heartbreaking. what i find most ha rd est try heartbreaking. what i find most hardest try to keep my mother in good spirits because she is his main carer. my dad is living in his own world really and seems fairly content. my mother is so upset all the time and depressed. my siblings
andi the time and depressed. my siblings and ifind the time and depressed. my siblings and i find that difficult. we just feel helpless as there is only so much we can do with young children of our own. there has also been a real reluctance from her to seek help which we find so frustrating. it has really changed my perspective on life and to live each day with positivity. take that trip, spend that money, have those experiences, as you never know what life will bring. absolutely. it is not a dress rehearsal. i have some breaking news to bring you. the first is to do with prince william, the duke of cambridge. kensington palace has announced that he will visit israel, jordan and the occupied palestinian territories this summer. the visit is at the request of her majesty's government and has been welcomed by the israeli, jordanian and palestinian authorities. further details will be announced in due course. and m15 has reduced the threat level to great britain from northern ireland related terrorism from substantial to moderate, which
means that a terrorist attack is possible but not likely. m15 has reduced the threat level to the uk from northern ireland related terrorism from substantial to moderate, which means an attack is possible but not likely. the home office says it's considering allowing a medical cannabis trial to treat a six—year—old boy with a rare form of epilepsy. alfie dingley, from kenilworth in warwickshire suffers up to 30 violent seizures a day. his mother took him to the netherlands to take a cannabis—based medication in september and says while there his seizures reduced in number, duration and severity. the home office had so far denied six—year—old alfie dingley access to the drug due to it being a banned substance. alfie's mum hannah deacon joins me on the programme. thank you for talking to us.
why have they changed their mind? well, we had a very good meeting on monday with the home office minister and his advisers, and also our mp who has been extremely helpful with organising everything for us. we were presented with this option about the fact we could use the medication that three months under the clinician in the uk, to show its effectiveness, and after that point, apply for a home office license so alfie could use it in the country. we have done five months of the trial in holland where we had a report done by our paediatric urologist, but they feel they want a uk clinician to do a trial as well. we are very positive they have given us we are very positive they have given us this lifeline. i think they see
what a serious issue we have here. how important it is alfie does not go back into being severely ill as he was before we went to holland. i hope we get this action plan into place quickly. we have been told it will be within a month so we hope that will happen. could you describe for our audience what it is like you as alfie's mum when he has a seizure? well, just to clarify, alfie has a condition which is genetic which causes cluster seizures, he was having a cluster of severe seizures every four to ten days. not every day but when he does they are very aggressive, he doesn't breed and they don't stop without intravenous steroids. —— breathe. we can't
manage it at home, we go to a&e. by the time we get to our local hospital 15 minutes away he could have had five seizures. it is a very aggressive presentation and be anything that stops it is intravenous steroids. the worst thing i have experienced. i did it for two years come every week, watching my child suffer. it is not something any parent should have to go through, or child. he is a very brave, strong little boy. but his body won't last forever if uk —— if he is injected with steroids every week. the home office says the government has huge sympathy, the policing minister wants to explore every option and has met with you to discuss treatments but no decisions have been made and any proposal would need to be led by senior
clinicians using sufficient and rigorous evidence. no decisions have been made after the child is what that means, isn't it? yes, they are still on the fence a little bit, which is upsetting. we have been given this option. i want a commitment from them they are going to help alfie. as a mother, thatis going to help alfie. as a mother, that is all i am, his mum, i am not a politician, iam not an that is all i am, his mum, i am not a politician, i am not an activist, iamjusta a politician, i am not an activist, i am just a mother who is tired of seeing my son suffer, and i have found something that helps him. and i want everyone to get together and make this happen to him. it is his human right to be well. this makes him while. and i understand there are legal sites, legislation, him while. and i understand there are legalsites, legislation, red tape. but we need to act quickly and
i want some sincere help from the home office, some commitment, sorry, that they will make this happen. and this is what they have offered us andi this is what they have offered us and i want it to happen, quickly. thank you very much the talking to us thank you very much the talking to us this morning. cani us this morning. can i say one thing. everyone watching, please, if you support what we are trying to do, please follow us on facebook, we have a link where you can lobby your mp, just fill your details in. we need people power on this, we need our mps, and this will happen for him if we come together and support him and make it happen. thank you. thank you. the thank you. the government thank you. the government has announced it will not press ahead with the second part of the lettuce
and enquire into press standards and regulations, the culture secretary has told the house of commons there will be no part two of the inquiry, the inquiry set up into press standards and regulations after phone tapping claims around the news of the world which lets —— which led to it closing. so many of you have got in contact with us about dementia. lewis is in edinburgh. hilary is in northern ireland. my sister, she would be six years
older than me but she helped me whenever my ca re older than me but she helped me whenever my care “— older than me but she helped me whenever my care —— whenever my kids we re whenever my care —— whenever my kids were young and it is something for me to help her back. caring for her is difficult, whenever i see my nephew straggling. the bureaucracy of social services, the office of care and protection for the management of her finances, the housing executive in relation to having her home adapted to meet her needs. i was a care having her home adapted to meet her needs. i was a care manager having her home adapted to meet her needs. i was a care manager in dementia care, and i currently work in mental health. the difficulty i understand is that when somebody‘s environment isn't working for them, then the care becomes more difficult and that is when they are drawn to nursing care. she is a health professional says she knows about these areas and she
finds it hard to bring the different parts of the service together to help her sister with dementia. how will it be for the rest of us? that was my experience, a total minefield. before my dad was diagnosed, we didn't want to believe this could be the case. we were told to get on with it, so to speak. we had a lot of help when i got in touch with alzheimer's scotland. they gave us the next steps to do. in terms of banks, financial institutions, they... changing power of attorney was good for us but it was slow. thank you, both. the met office has upgraded its weather warning for south wales and south—west england to red, as freezing
temperatures and snow affect much of the uk. it means lives are at risk. another red warning is already in place in central scotland where hundreds of people have been spending the night trapped on the m80 in central scotland because of the snow. police are appealing to people to stay put until help arrives. hundreds of schools are expected to be closed for a second day, across many parts of the uk. local authorities have been struggling to keep roads clear and many rail services have been disrupted. but the snow is, of course, providing some beautiful images. have a look here at how the london skyline was transformed by snow. leslie in glasgow said she feared she would die in chaos on the m80. and brian in north lanarkshire said he ignored red warning because he couldn't not attend to his patients. and polly is an employment lawyer who can tell you what rights you haveif who can tell you what rights you have if you cannot make it into work.
the weather was horrendous, it got worse and worse. 18 hours. who helped you in the end? the emergency services arrived at 5am this morning with a cereal bar and some water. after that, ifollowed the trucks so we could get through. there were no snowploughs, nothing. we are showing your video which you took from your phone just outside your car. that was at 5am this morning. you are all right now? i am fine, a bit tied. —— tired. why did you think you are going to die? the first few hours it was fine.
there was an amber warning, we are used to this type of weather. then all of a sudden, the roads were jammed. when i got past the junction, there were two police people, lorries had jackknifed, a policewoman said, you need to pass this card, if you can manage, you need to go. the k, so i was turning. stupidly, i went. need to go. the k, so i was turning. stupidly, iwent. there need to go. the k, so i was turning. stupidly, i went. there were no road markings. i was the only person i could see for two hours. on the other side, northbound, there were people that, i was screaming for someone to help. nobody could stop. then the northbound traffic disappeared, that was closed. it
took maybe three hours. then the trucks arrived, they overtook me and i was able to go behind. then we we re i was able to go behind. then we were parked there for the night. you had to attend to your patients, tell us had to attend to your patients, tell us why? at the time i was leaving for work, but getting back was a nightmare. i ended up getting trapped on the motorway the eight or nine hours but hats off to the people who came out of their houses to help us. making sure people were 0k. the van driver behind me was asking if children wanted to make use of his fan to sleep. polly, please can you answer
this, can employers, can employees legally refuse to come to work in weather like this? technically, employees have a duty to try to get to work and if they don't attend, technically that is an unauthorised absence. however, common sense often prevails in this situation, we are dealing with serious circumstances. employers ultimately have a duty of care to their employees's health and safety. if you don't go, will you be played —— will you be paid? no. thank you or your company today. on the programme tomorrow. we'll look ahead to theresa may's big speech on brexit. more destruction is likely today
across the uk. we have more heavy snow across many parts, particularly where you see these amber areas, but more so dad was south wales, dorset, sorry “— more so dad was south wales, dorset, sorry —— more so in south wales, and somerset. heavy snow moving in across southern areas, but further north, heavy snow showers continued to feed in. heavy snow also towards northern ireland. temperatures struggling to get above freezing. factor in a stronger wind, it will feel more like minus 14. across south wales, devon, somerset where there is a red warning, we are expecting up to 20 centimetres of snow, up to 50 centimetres over the
moors, causing significant disruption this evening and tomorrow morning. this is bbc news and these are the top stories developing at 11. red weather alerts meaning there is a risk to life have been issued in south—west england and south wales. hundreds of drivers have been stranded on a m80 in scotland. we're in the car and we're warm. there's not much to see it's like a car park. cars everywhere, no one has got their lights on anymore. i think everyone is trying to sleep. more snow is expected during the day — with severe travel disruption when storm emma blows into the south—west