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5.0
Dec 30, 2020
12/20
by
Spread the Sign
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ASL vocabulary
Topic: chronic illness
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21
Jun 8, 2010
06/10
by
Myers, Julian S., ed
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Includes bibliographies
Topics: Chronic illness, People with disabilities
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Nov 24, 2013
11/13
by
April McGowan
audio
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Topics: Christian, Living, women, inspirational, suffering, chronic_illness, encouragement
Chronic illnesses account for 70% of deaths in the United States alone. The cost associated with these illnesses was $1.3 trillion in the U.S. as of 2003, with an estimated future cost of $4.2 trillion in 2023. Additionally, chronic pain affects roughly 50 million people in the U.S. and costs over $70 billion annually in healthcare costs and lost productivity. A need exists to identify more effective forms of chronic illness management; instead of focusing on the treatment of a diagnosis...
Topics: acceptance, anxiety sensitivity, chronic illness, perceived disability, clinical psychology
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The Bipartisan Policy Center hosted an event on chronic illness care in Washington, DC. Senators Orrin Hatch (R-UT) and Ron Wyden (D-OR) provided keynote remarks and were lauded for their work on chronic illness reform with the CHRONIC Care Act. Medicare and Medicaid Services Secretary Seema Verma also delivered a keynote address on ways Congress could combat healthcare costs and improve care for Americans with chronic illnesses. Following those remarks, a panel of academics and healthcare...
Topics: Bipartisan Policy Center Discussion on Chronic Illness Care, Television Program
Source: Comcast Cable
Hosted by Janine Zagel, Foundations of Change focuses on conversations with non-profits in Billerica and beyond. This episode: Lauren Deluca, President, Chronic Illness Advocacy & Awareness Group (CIAAG)
Topics: foundations of change, non-profits, billerica, bob thorlton, janine zagel, billerica access...
In this paper, human immunodeficiency virus (HIV) and Acquired Immune Deficiency Syndrome (AIDS) are analyzed in terms of stigma and illness trajectory. The primary purpose is to conceptualize how individuals with HIV/AIDS experience stigma and to demonstrate how these experiences are affected by the social and biophysical dimensions of the HIV/AIDS disease course. This paper is informed by existing conceptualizations and ongoing research into the experience of HIV/AIDS caregivers. Three stages...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, At Risk Persons, Caregivers, Chronic Illness,...
Follow-up care ensurescontinuity of client care, gives room for provider-client interactions and sustains self-management measures in the client with chronic illness. This study examined nurse-client interactions and follow-up care in integrated management of the chronically ill patient. 240 nurses were selected from secondary and tertiary health institutions in Anambra State of Nigeria using purposive sampling technique. Two research questions and two null hypotheses guided the study. The...
Topics: Chronic Illness, Follow-up care, Integrated care, Nurse-client interaction, Health care...
This study examined the experience and planned activities regarding nursing home admissions of persons with Acquired Immune Deficiency Syndrome (AIDS). Surveys were sent to 235 nursing home administrators in Illinois to obtain information on the facility, staff needs and experiences in service provision to persons with human immunodeficiency virus (HIV) infection, admissions and finances, and respondent information. Responses from 54 nursing homes revealed that fewer than 10% of the facilities...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Chronic Illness, Health Care Costs, Nursing...
Topics: wellness, illness, chronic_illness, suffering, peace, contentment, IBS, Chron's_disease, allergies,...
This document contends that gender has a significant impact on individual health status within the family. The Carter and McGoldrick (1989) family stage model is used to illustrate how gender and health interact within the family developmental process. The model of the traditional middle-class family life cycle is described as involving the following stages: the launching of the single young adult, the joining of families through marriage, the family with young children, the family with...
Topics: ERIC Archive, Chronic Illness, Family Problems, Family (Sociological Unit), Physical Health, Sex...
This document presents witnesses' testimonies and prepared statements from the Senate hearing held in Birmingham, Alabama to alert the public to the problems associated with catastrophic illness; learn what community services exist for older adults; and clarify what requirements for services, research, and education must be met to formulate an effective catastrophic health proposal. It includes statements by Senators Richard Shelby, Howell Heflin, and John Melcher. Witnesses providing testimony...
Topics: ERIC Archive, Caregivers, Chronic Illness, Health Insurance, Health Needs, Hearings, Older Adults,...
This article features the art and poetry of two patients, and details the process of bringing creative, expressive arts into counseling with adolescents living with acute or chronic illness. (Contains 17 references.) (GCP)
Topics: ERIC Archive, Adolescents, Cancer, Chronic Illness, Counseling Techniques, Creative Art, Foreign...
The development of depression in ill and healthy adolescents is explored and the question of whether hospitalization is accompanied by improvement in depression among cancer and non-cancer patients is addressed. Two studies, one between and one within subjects, longitudinal design with repeated measurement over 4 months, were carried out. MANOVA and ANOVA analyses were used. The three groups of subjects were (1) patients with cancer (N=30; mean age=15.5 years); (2) patients with some other...
Topics: ERIC Archive, Adolescents, Cancer, Chronic Illness, Depression (Psychology), Foreign Countries,...
Draws on some of the literature from the fields of nursing and psychology which links counseling practice, hope, and illness. Addresses the issue of false hope and the challenge of being a hopeful counselor. Two working examples are used to suggest and briefly demonstrate interventions counselors might make. (Contains 31 references.) (GCP)
Topics: ERIC Archive, Chronic Illness, Counseling Techniques, Counselor Client Relationship, Foreign...
Diabetes is a serious disease. It means that one's blood glucose, also called blood sugar, is too high. Having too much glucose in a person's blood is not healthy. This paper offers tips for managing diabetes.
Topics: ERIC Archive, Diabetes, Adolescents, Health Behavior, Chronic Illness, Eating Habits, Nutrition,...
This report accompanies House of Representatives bill 2088 and recommends passage of the bill to revise and extend programs established in the Temporary Child Care for Handicapped Children and Crisis Nurseries Act of 1986. The bill extends the programs for 2 years, strengthens reporting requirements, and requires the states to provide interagency coordination. Need for the legislation, as expressed through Congressional testimony, is documented. The report includes a legislative history,...
Topics: ERIC Archive, Agency Cooperation, Children, Chronic Illness, Disabilities, Federal Legislation,...
This document provides witnesses' testimonies and prepared statements from the Senate hearing called to examine the problems of catastrophic health care costs. Statements are included from Senators John Melcher, Quentin Burdick, Larry Pressler, John Heinz, and Pete Wilson. Prepared statements are included from Senators David Pryor and Charles Grassley. Joan Yelineck, Edith Reiger, and Helen Fish testify, describing their experiences with the devastating health care costs and the sacrifices they...
Topics: ERIC Archive, Caregivers, Chronic Illness, Family Problems, Financial Problems, Health Care Costs,...
In October 1989, the Division of Applied Research of the National Institute on Drug Abuse (NIDA) convened a panel of experts to assess whether the basic principles and approaches that have been used in the development of workplace drug abuse programs and community acquired immune deficiency syndrome (AIDS) education programs can be applied to addressing employer and employee needs regarding human immunodeficiency virus (HIV)/AIDS in the workplace. This document lists NIDA workgroup members,...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Chronic Illness, Drug Abuse, Employee Assistance...
This issue of the "MCH Program Interchange" describes selected materials and publications in maternal and child health (MCH) nutrition services and programs. The materials were developed by or are available from federal agencies, state and local public health agencies, and voluntary and professional organizations. The information is intended to encourage communication and stimulate the planning, development, and provision of improved nutrition services to MCH populations. Information...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Breastfeeding, Child Health, Chronic Illness,...
This bibliography focuses on resiliency in children and youth with disabilities and chronic illnesses and in their families. The materials included address factors associated with the successful adaptation of children and their families to the many demands of chronic illness and disability. The bibliography contains approximately 35 references to books, articles, and book sections on resiliency in general; approximately 55 annotated entries for books, articles, and book sections on resiliency...
Topics: ERIC Archive, Adaptive Behavior (of Disabled), Adjustment (to Environment), Chronic Illness,...
This paper reviews research literature pertaining to the pain and anxiety associated with pediatric cancer and the use of hypnosis as an adjunct treatment. It is noted that pain and anxiety are most often associated with the procedural treatment of cancer, and that the literature suggests that both pain and anxiety are multi-faceted constructs. This review focuses on the pain and anxiety associated with treatment of the disease (bone-marrow aspirations, lumbar punctures, and chemotherapy),...
Topics: ERIC Archive, Anxiety, Cancer, Children, Chronic Illness, Coping, Hospitalized Children, Hypnosis,...
The problems of access, adequacy, and affordability of health insurance for persons with severe chronic conditions are analyzed. Part 1 defines the target population by considering conceptual and methodological issues, and examines statistics from various national surveys. Part 2 examines the distribution of health insurance throughout the population by age, family income, employment, and health status, and then compares the health insurance status of persons with and without disabilities....
Topics: ERIC Archive, Chronic Illness, Demography, Disabilities, Health Care Costs, Health Insurance,...
Studies consistently have found that caregivers who use respite care are satisfied with and appreciate such care. However, preliminary evaluations of the effect of respite care on caregiver burden have had mixed, limited, and in some cases null empirical findings of program effectiveness. This study explored the relationship between caregiver characteristics and utilization of respite care in order to understand the caregivers' perceptions of burden and social support as well as their need for...
Topics: ERIC Archive, Alzheimers Disease, Chronic Illness, Disabilities, Family Caregivers, Family...
In training counseling students, it is increasingly important to acquaint them with the clinical research literature exploring the efficacy of particular treatments. This review of empirically supported treatments (EST's) concerning psychophysiological disorders and chronic pain is intended to facilitate the educational process. EST's, or evidence-based treatments, are based on studies recommended by the American Psychological Association (APA). To qualify for inclusion in the EST listing,...
Topics: ERIC Archive, Chronic Illness, Comparative Analysis, Counselor Training, Health Maintenance...
This collection of annotated bibliographies focuses on the social skills of adolescents, and is drawn from a national database of current programs and literature regarding adolescents with chronic illnesses and other disabilities. Bibliographic materials listed include documents and articles selected from the database of the National Center for Youth with Disabilities. Individual bibliographies cover the following areas: chronic illness and disabilities (seven references), cancer (six),...
Topics: ERIC Archive, Adolescents, Chronic Illness, Communication Skills, Disabilities, Inservice Teacher...
This bibliography covers a wide range of issues related to the needs of adolescents and young adults with chronic illnesses and disabilities and their families. For each item in the bibliography, information provided includes author, title, source, date, and abstract. Price information is given when available. Materials include books, audiotapes, newsletters, comic books, booklets, videotapes, and training packages. The bibliography is divided into "Materials for Youth" (15 items),...
Topics: ERIC Archive, Adjustment (to Environment), Adolescents, Child Rearing, Chronic Illness, Coping,...
This report provides results from an investigation of comparative disability risks of specific chronic physical and mental illnesses, diseases, and impairments. National estimates are presented of the risks of chronic health conditions causing disability--including activity limitation, work disability, and need for assistance in basic life activities--based on an analysis of data from the National Health Interview Survey (NHIS), a continuing survey of the health of the noninstitutional United...
Topics: ERIC Archive, Adults, Age Differences, Children, Chronic Illness, Demography, Disabilities,...
Chronic pain among children is poorly understood, and few studies portray the experiences of sufferers and their families. This qualitative case study aimed at gaining a rich description and a contextual understanding of the experiences of a young chronic pain sufferer, aged 6, and her family members through an art-making process. Several examples of the art images are presented along with excerpts from the exploratory conversations that captured the meanings that the child and family members...
Topics: ERIC Archive, Pain, Family Life, Coping, Chronic Illness, Young Children, Case Studies, Art...
Hosted by Janine Zagel, Foundations of Change focuses on conversations with non-profits in Billerica and beyond. This episode: Lauren Deluca, Founder of Chronic Illness and Awareness Advocacy Group
Topics: foundations of change, non-profits, billerica, bob thorlton, janine zagel, billerica access...
This publication contains the following articles: (1) "A Pilot Study of the Relationship between Co-Dependency and Recreation Using Women with Histories of Domestic Violence" (Pamela E. Foti and Lori S. Gelvin); (2) "Discretionary Time Use and the Chronically Mentally Ill" (Thomas K. Skalko); (3) "Therapeutic Recreation and Family Therapy: A Needs Analysis of Perceived Needs of Wives of Stroke Patients" (Roy H. Olsson, Jr., Sharon G. Rosenthal, Leonard O....
Topics: ERIC Archive, Battered Women, Behavior Patterns, Chronic Illness, Group Homes, Leisure Time, Mental...
Cinemeducation refers to the use of movies or movie clips to educate learners about the psychosocial aspects of health care. This paper describes the use of a clip from the movie, "What's Eating Gilbert Grape?" to teach medical students about chronic illness. The clip is used to set up a case study based on the lead character, Gilbert Grape. For the sake of the seminar, Gilbert is given a diagnosis of low back pain. After watching the clip, learners are asked to construct a genogram...
Topics: ERIC Archive, Chronic Illness, Medical Students, Instructional Films, Case Method (Teaching...
This Congressional report notes that the aging of the United States population has presented significant challenges to the development of health and social policy. It advocates a better understanding of the heterogeneity of the elderly population as a first step in reframing issues concerning health, aging, and societal responsibilities and in developing effective public policies. An overview of the aging population is presented and a health profile of the elderly in the United States is...
Topics: ERIC Archive, Chronic Illness, Financial Support, Futures (of Society), Health Care Costs, Health...
The annotated bibliography is intended to give health care providers and planners background information and other resources on health transition issues for young adults with chronic health conditions. The 23 bibliographic citations date from 1972 to 1989 and are grouped into the following categories: U.S. demographics and health services utilization, empirical research on health outcomes, editorials and program descriptions, and health care in the United Kingdom. In addition, eight programs...
Topics: ERIC Archive, Chronic Illness, Delivery Systems, Foreign Countries, Health, Health Programs,...
This document notes that a recent threat to American's youth is the risk of infection from the human immunodeficiency virus (HIV). It views youth at high risk for alcohol or other drug use as also being, in all probability, at highest risk for exposure to HIV, and suggests that programs set up to prevent adolescents from becoming involved with alcohol or other drugs can apply many of the same principles to stopping the spread of HIV. The information presented in this technical report was...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Adolescents, Alcohol Abuse, At Risk Persons,...
It is the position of the National Association of School Nurses (NASN) that students whose healthcare needs affect or have the potential to affect safe and optimal school attendance and academic performance require the professional school nurse to write an Individualized Healthcare Plan (IHP), in collaboration with the student, family, educators, and healthcare care providers. It is also the position of NASN that it is the responsibility of the professional school nurse to implement and...
Topics: ERIC Archive, School Nurses, Individualized Programs, School Health Services, Chronic Illness,...
The school nurse serves in an essential role to provide expertise and oversight for the provision of school health services and promotion of health Education. Using clinical knowledge and judgement, the school nurse plans and provides health care to students, performs health screenings and coordinates referrals to the medical home or private healthcare provider. The school nurse serves as a liaison between school personnel, family, community, and healthcare providers to advocate for health care...
Topics: ERIC Archive, School Nurses, Role, School Health Services, Health Promotion, Health Education,...
This paper discusses issues concerning inclusion of children with special health care needs in the regular classroom. Six categories of health conditions are discussed in terms of their implications for the educational setting. These are: (1) "hidden" conditions (e.g., juvenile rheumatoid arthritis, sickle cell anemia, asthma, and cystic fibrosis); (2) infectious conditions (e.g., Acquired Immune Deficiency Syndrome [AIDS], hepatitis B and cytomegalovirus); (3) conditions which cause...
Topics: ERIC Archive, Chronic Illness, Classroom Techniques, Disabilities, Educational Methods, Elementary...
9
9.0
May 29, 2013
05/13
by
Langenfeld, Carol J; Langenfeld, Douglas E
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Includes index
Topics: Diseases - General, Healthy Living, Chronic Illness, Caregiving, Nursing Home Care, Medical,...
The chronic mentally ill experience substantially higher rates of HIV infection than the general population. This paper examines the problems which confront the chronic mentally ill and society at large. Discussed are the questions of whether or not psychiatric patients should be excepted, due to their cognitive and behavioral impairments, from the protection of AIDS confidentiality laws. The question is raised that if some mentally ill are excluded, what will be the guiding criteria for...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Chronic Illness, Confidentiality, Ethics,...
Intended as a resource for individuals wishing to evaluate diabetes education programs, this handbook, one of a series of seven, provides a collection of measuring devices that can improve the quality of such evaluations. Chapter 1 introduces the handbook's contents and outlines evaluation related issues specific to diabetes education programs. Chapter 2 introduces the key operations involved in program evaluation, emphasizing the role of assessment instruments in the gathering of information...
Topics: ERIC Archive, Affective Measures, Attitude Measures, Chronic Illness, Diabetes, Evaluation...
This paper highlights the public and private health insurance options for young people with disabilities or chronic health conditions including several recent Federal initiatives to increase access to health care for working adults with disabilities. Discussion of public health insurance eligibility and coverage focuses on aspects of Medicaid and Medicare including eligibility for children and adults with disabilities, medically needy children and adults, eligibility through Social Security...
Topics: ERIC Archive, Adolescents, Chronic Illness, Disabilities, Eligibility, Employment Programs, Federal...
This document discusses the application of a systems approach for family counseling for African American families with a family member infected with Acquired Immune Deficiency Syndrome (AIDS). It begins by citing statistics that illustrate that there exists a disproportionate representation of cases of AIDS among African Americans. A discussion on empowerment of the family gives some historical perspective to the black family and cautions against taking a Eurocentric approach when working with...
Topics: ERIC Archive, Acquired Immune Deficiency Syndrome, Black Family, Chronic Illness, Coping,...
This literature review provides information to help in building a model of family caregiving for children with emotional disorders, focusing on the elements of stress, coping, and appraisal. Because literature on families' perceptions, use of resources, and coping with a child with an emotional disorder is nonexistent, the review uses the literature on family responses to a child's chronic illness or disability. This literature is extensive and cuts across numerous professional domains and...
Topics: ERIC Archive, Adjustment (to Environment), Chronic Illness, Coping, Disabilities, Emotional...
4
4.0
Jun 24, 2021
06/21
by
Thompson, Robert J. (Thompson, Robert Joseph), 1945-
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xii, 382 s. : 26 cm
Topics: Chronic diseases in children -- Psychological aspects, Adjustment (Psychology) in children,...
This resource guide covers the psychosocial and health concerns of adolescents with chronic illnesses. In a section titled "Bibliographic Information," the guide describes 12 books on general medical and social aspects, three resources on demographics, four resources on school issues, and 14 resources on psychosocial and family issues. A section titled "Training Materials" describes four videotapes and a booklet. A final section offers descriptions of six programs serving...
Topics: ERIC Archive, Adolescents, Chronic Illness, Demography, Educational Needs, Elementary Secondary...
This annotated bibliography offers background information and resource information on decision-making issues for young adults with chronic conditions. The bibliography includes books, journal articles, booklets, audiotapes, and videotapes. For each item listed in the bibliography, the following information is provided: author; title; source; and abstract. The bibliography lists 16 resources on health issues, focusing on ethics, compliance, competence to consent to treatment, and the role of...
Topics: ERIC Archive, Adolescents, Chronic Illness, Decision Making, Family Role, Health, Psychological...
This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP). The three programs are described, followed by discussion of the key family support issues and practices that were identified. Key issues include: a...
Topics: ERIC Archive, Chronic Illness, Delivery Systems, Family Programs, Financial Support, Home Programs,...
This policy paper addresses sexuality issues of youth with disabilities and chronic health conditions. The first section introduces the problem of teen pregnancy and pregnancy prevention. The second section provides definitions of disabilities including both visible and invisible disabilities. Risk factors for teen pregnancy are identified and discussed next, including risks for all youth, risks for youth with disabilities, poor academic achievement/high dropout rate, low expectations for post...
Topics: ERIC Archive, At Risk Persons, Chronic Illness, Community Programs, Definitions, Disabilities,...
Hosted by Janine Zagel, Foundations of Change focuses on conversations with non-profits in Billerica and beyond. This episode: A spotlight on the issue of chronic illness and opioids with Lauren Deluca
Topics: foundations of change, non-profits, billerica, bob thorlton, janine zagel, billerica access...
